eye tic?

[Guest diane]

Yes, Marie you are certainly right about daily waste elimination. We had to "re-train" our son over the course of almost two years to have a daily bowel movement, preferably at the same time each day. It made such a difference in his health. Not something people regularly talk about, but you are right - it's sooo important. Kids tend to be on-the-go and they hold it in, hold it in, don't go for a few days at a time, and that's really bad for their health. Plus then every time they DO go, it's a problem because it's so hard, and then they avoid it even more......

It was a consulting pediatrician that brought this important fact to our attention when our son was having problems. When I asked him how long it would take to get him back to "normal", i.e. a daily bowel movement with no problems, he said it would take the same length of time to reverse it, as it took for him to get in that condition, which was about a year and a half. And he was right.

Live and learn!

[mmazz]

I got that time beat, I started juicing and introduced Spinach ...natures own laxative. It stregthens the muscles of the intestines and the rest goes down the drain. It took about 2 1/2 weeks. Funny enough he brings in books and since we started this his reading level increase. I know someday his wife will complain about the time he takes in the bathroom, but that's her problem

 

Marie

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Hi all,

 

Things are improving here - we have kept our son home from school since Tuesday afternoon just to give him a break - he has been laying pretty low, playing a lot of lego. His tics are improving slow but steady - and the lump on his neck is also going down. He really has no vocal tics it is just his eyes - and they are becoming more subtle. His demeanor has also improved, he had been a little argumentative and not wanting to do homework but today was happy to work on some school stuff. I am trying to decide if I should keep him home all day tomorrow or send him for the afternoon. We kept him home from soccer mid week.

No more seizure like stuff going on - we still have not heard about when our appointment will be.

 

Andy - I did do a little research on taurine - am I correct that it is L-Taurine - I found some at the drug store and wondered if you could tell me the amount your son gets as I think he is a little younger than my son. My son is almost 7 and weighs about 55lbs.

 

As a side note - I happened across Dr. Phil tonight - I admittedly often watch Oprah when I am making dinner and Dr. Phil is on afterwards - I usually do not tune in as the kids are up and it is a CRT screen in the kitchen - but today I got drawn in as it was on OCD - my son has not had OCD but I have read a lot about it related to PANDAS. I often thought it would have been better if he was in the 50% who got the OCD and not the tics - but the more I know about severe OCD the less I would wish it on anyone. Anyway...there was a few seconds devoted to supplements in treating OCD - the only one they mentioned was B 6 (I think) but I was happy to at least hear a mention of alternative treatments for OCD.

 

Marie - so sorry your guy is sick, but so glad you figured out he had strep and did not leave it untreated. Chemar has already given you great info - it seems the probiotic is key. My son was on full antibiotics for 5 months with no probiotic which I am sure contributed so some of his problems or added new ones. He continues to take antibiotics daily so I do give him probiotics daily as well. I had heard 2 hours was the time to delay between the two but to be safe I would go with the three hours. We usually do the antibiotic in the morning and probiotic at night.

Hope he feels better soon.

 

Dara - so great to hear from you...you sound so positive, it really comes through in your post. You seem to have all the right connections made now, so with hope you will slowly ( or better yet quickly) solve the puzzle in front of you. Good Luck and I look forward to hearing updates. I am amazed you are still with no TV - that is great. I remember at the beginning how reluctant you were to take away yet something else - and now it has been such a positive experience. Glad the hmmm tic is on it's way out, I know how much that made you crazy. There have been a few times my son has had the same one but only when he is eating, and it would make me crazy too.

[kim]

Alison,

 

So glad to hear your son is doing well. That was quite an ordeal you guys went through. Sounds like your son handled it great, with the school question and answer session and all. Probably harder for mom to recover. These kids are really quite resilient aren't they?

 

Kim

[Andy]

Alison, this whole thing sucks but at least everyone here is doing something and not accepting the status quo of the regular medical industry.

 

As for the Taurine. My son is taking 500 mg. He is 6 years of age and weighs 41 pounds. The brand that we are using is Solgar mainly because it is free of corn,yeast, wheat,soy and dairy products as well as having no preservatives,artificial flavoring or colors. It is in capsule form so I mix it in a shake. It is suppose to be taken by itself and with a reasonable time between meals. We have so many supplements that it just goes into one of the three daily shakes.

 

Note: I have been reading alot of the autism website discussion boards and they all seem to have a topic in regards to the staring off into space theme. The parents who state that their children lost the autism label for detox all state that losing that stare was one of the first major steps. I found the connection interesting but not scary for our children may have that stare on occassion rather then most of the day.

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Just thought I would update here related to the seizure type stuff. It has been several weeks since he has had any eye tics or seizure type stuff - as I have said on another thread he is doing really well and only has a very subtle nose twitch from his last illness. He had his appointment for his EEG today - results will not be in for a couple of weeks but I wanted to post that the test itself was not intrusive at all - I think it was Daniel who was concerned about it. The appointment lasted about an hour, he lay on a bed and his head was measured and marked for where the electrodes go, they were all attached and then he was asked to do a few different things during the time, breathing deeply, closing eyes, opening eyes, and that was about it, the last part was the strobe light, he had to keep his eyes closed and they brought the light in front of him and it flashed for about 10 seconds and a slow rate, then the rate increased, each time there was a break for about 30 seconds then it would flash again. This happened about 10 times. He had no reaction to this light from what I could see, the technician said she did not see anything on the computer but was going between watching him and the screen due to what I had told her about the photosensitivity. I am not sure what I was hoping for, I guess part of me wanted something to happen physically to validate what I have been seeing. It will be interesting to see what the final report has to say.

It was interesting that the technician said after I described what has happened in the past with tv, movies, brightly lit stores, driving in the car, bright light off the lake - that all of these are triggers for photosensitive epilepsy and some seizures can be very similar to tics and it is at times hard to distinguish between the two. My maternal grandmother had seizures which she outgrew- and her daughter had rheumatic fever.

Either way I continue to be very positive that this will all one day be in his past - I do agree with everyone that we can speed up the process by healing their little bodies and making them as strong as possible. We continue to be amazed at how far we have come and with no chlonidine etc. As the technician said today she would never ever think he had any tics based on our time there.