anorexia

[Tamistwins]

PANDAS kids with anorexia can have distorted body image very young (mine was 7.5 years).

 

Did she have other symptoms that were helped with abs and IVIG?

Both my children are chronic, but yes she had a neck tic and a finger movement similar to snapping and eye blinking that all went away. unfortunately her eye blinking is back and its worse and she is very oppositional now and back talks. She used to urinate frequently and feel like wet, or dripping.. That too is back. She has sleep issues that are worse again and hoards. Some other ocd issues. From a young age she would line up dolls on floor I used to think it was cute but it's ocd she hasn't done it in a while but started again. Her hands have eczema probably from washing every time she goes to bathroom. And this child can whine and cry over nothing for endless hours. I'm sure I forgot something. About not being able to swallow... She says she can't swallow her tiny melatonin pill without applesauce because shes afraid of choking, it brings here alot of anxiety even though she has swallowed a larger pill in the past. She has a routine of saying goodnight and to leave in morning. She will not go to anyones house to play if I don't go.

[Tamistwins]

My dd, 5 at the time also became a restrictive eater with pandas. It was not fear of choking or getting fat. She would be hungry sometimes, but could not find anything palatable. All of her old favorites were not appetizing. The whole situation brought her a lot of stress, it was difficult. This issue resolve mostly with abx and steroids- but she still didn't go back to eating her favorites until she has pex.

Hi can you tell me your experience with pex, are u happy that you had that procedure ? how is your daughter doing now what has changed positives and negatives.

Thank you for sharing.

[Tamistwins]

Is she having any difficulty with swallowing and/or GERD like symptoms (heartburn)? Is she complaining of the taste being distorted? Is she complaining of the smell of the food?

No she hasn't told me or complained of that. The only thing i noticed its when she needs to swallow her probiotic. Unless she head applesauce with it she will scare herself saying she can't take it she will choke etc. Its a small pill and she had swallowed a larger pull before. But the drama and anxiety over taking this pill, so I give it to her with applesauce. She tells me shes not hungry or stomache hurts to avoid eating.