Dr. Susan Marra

[FallingApart]

I have an appt tomorrow with Dr. Susan Marra for DD. Marra is one of the NDs interviewed in the "insights into Lyme" book. Just wanting to know if anyone here has any personal experience with her.

 

This is not the route our ped was wanting us to go, so I'm a bit nervous stepping out on my own. I do feel good thatshe is interviewd in the book though!!

 

Still waiting on my own lab results!

[JuliaFaith]

Just wanting to know if anyone here has any personal experience with her.

We do not have any personal experience with her just heard thru a Lyme organization in Oregon that she is good with kids. Also, saw on her website that she uses the Marshal protocol which there has been some discussion on this forum about its' effectiveness. We were going to go to her until we got in to see a Dr. in Klinghardt's office. On one of his on-line discussions, he states that the Marshal protocol does not always work.

 

The workers at our local Vitamin Life store seem to know who she is as well. Will ask them next time I go in (soon) and see if they know anything else.

 

On another note, we stepped away from our PANDA dr. (we still see her bi-monthly) who we absolutely love and it was the best decision we could have made since ds was not progressing at all (that we could see) under her care.

Edited February 11, 2011 by JuliaFaith

[FallingApart]

Hmm, the Marshall Protocol makes me nervous. I hope she won't have a cookie cutter approach to all patients. I also saw that the MP hasn't been uniformly effective. This is overwhelming to me.

[susie]

Just wanting to know if anyone here has any personal experience with her.

We do not have any personal experience with her just heard thru a Lyme organization in Oregon that she is good with kids. Also, saw on her website that she uses the Marshal protocol which there has been some discussion on this forum about its' effectiveness. We were going to go to her until we got in to see a Dr. in Klinghardt's office. On one of his on-line discussions, he states that the Marshal protocol does not always work.

 

The workers at our local Vitamin Life store seem to know who she is as well. Will ask them next time I go in (soon) and see if they know anything else.

 

On another note, we stepped away from our PANDA dr. (we still see her bi-monthly) who we absolutely love and it was the best decision we could have made since ds was not progressing at all (that we could see) under her care.

 

Julia Faith,

 

I was just looking at her website to see what she said about the Marshall Protocol. All I could find was an article about vitamin D and how important it is to get enough and it also talked about using huge doses of vitamin D. Do you know where on her website she talks about the Marshall Protocol? This makes me nervous too. I have an appointment with her next week for my DD. I can't imagine how I could possibly keep my daughter out of the sun all summer (even if I did think it might help).

[JuliaFaith]

Susie:

 

Researched her about 4 months ago so do not remember where I read it. It may have been posted on the internet from a prior patient, not sure. You could also call her office and ask.

 

Also, Vitamin Life 3, 425-869-7000, has at least one worker that seems to know about Dr. Marra.

 

With Vitamin D, sometimes it is not good for lyme. My ds was originally put on it then taken off because of some tests that came back. I did not understand the explanation from the doctor at all.

 

Best wishes.

Edited February 11, 2011 by JuliaFaith