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Posted

My DS,10 was diagnosed in September 2010 (symptoms began May 2010). He is currently takes Zithromax-250 mg/2 times once a week. After reading this forum, it seems this isn't as much as others are taking for a prophylactic dose. When he has a known exposure, his PANDAS doc will increase to 5-10 days of the antibiotic. He was symptom free (after a round of antibiotics and a steriod burst) throughout November and most of December. Around Christmas, the OCD came creeping back (hand rinsing), I cntact his doctor in early January and he was given a 10 day course that ended over two weeks ago and we have seen no improvement. The hand rinsing has waned, but new behaviors have emerged, avoiding eye contact, touching objects twice, walking around rooms in circles. In public, he can keep it together, we were at a Superbowl party and he was able to keep his behaviors in check. I've heard through other parents that strep is running rampant through our schools, and it seems his current dose isn't cutting it. For those taking a prophylactic dose, what are you taking and how often?

Posted

My son is 14 and takes zithro 500mg three times a week. Three times a week is more common for prophylaxis than twice a week, with zithro.

 

sometimes i let him go a week without it, and give him olive leaf extract.

i just do this because he has celiac and is still healing the gut tissues, so every now and then i try to give him a little break.

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