Enzymes and autism website (yeast too)

[Claire]

Hi all,

 

Jennifer pointed me to an awesome website on enzymes. It is associated with autism, but the enzyme discussion is clearly applicable regardless of neurological issue. Also, I notice lots of discussion on yeast. A few mention Alka-seltzer Gold helping with die-off (Jennifer mentioned this also). They discuss food allergies, DAN and nutrients.

 

It appears that the woman who wrote the enzyme book often answers questions--not sure, but the first name is the same and her posts are great.

 

This site is nothing like here--it is overwhelming. My recommendation is to sign up for the email digest. They send out an email every day, or every 25 posts. Sometimes you get 4 emails a day, meaning 100 posts. This saves a lot of time clicking--you can go to the website. You can always cancel.

 

Now that so many here are doing immune testing and treatment, some of the questions are getting beyond the experience of many here, I would suggest that if you don't get an answer. Some recent postings that got me thinking of this--where our

 

1. Jean on reaction to new supplements from DAN doctor

2. efgh on DT vaccine risk given likely immune issues

3. Kim on high alk ph. (though thank goodness FJ from Braintalk popped in, since she actually had experience there).

4. Andy's earlier questions on chelation--though I think the DAN paper address a lot.

 

I am not pointing people away from here at all. In fact, I hope that if you learn something on your issue, you will please share it with us here! Also, let us know if one board is better. I am sure I will ask on the enzyme board at some point, given my son's low amino acids we recently discovered. I think the autism group in general has the most experience with treating immune issues. Yes, ours don't map perfectly, but from what I read, their regression and aggressiveness reactions to certain things could reflect as tics in kids here. I have never read the Braintalk board so don't know what it is like, but it is active. I just pay my DAN doctor a fortune for all my questions via telephone consults. And of course Pfeiffer.

 

Enzyme board

http://health.groups.yahoo.com/group/enzymesandautism/

 

Braintalk Autism board

http://brain.hastypastry.net/forums/forumd...isplay.php?f=91

 

Good luck.

 

Claire

[Andy]

I was thinking that enzymes might be a part of the solution with helping to repair the gut. I have read that yeast has feelers that damage the lining and causes small holes and therefore the leaky gut/delayed food allegies. So of course I will look up this website and would encourage others to do the same. I had noticed that Kirkman labs has a large section on enzymes to help with digesting food.

[Claire]

Andy,

 

On that site, someone commented on enzymes healing the gut.

 

By the way, my son had low amino acids, so I am going to do the AFP peptizade for better digestion of normal proteins (not just gluten/casein), to see the impact (or not).

 

Finally, Jennifer told me of chewable enzymes from Pfeiffer (thanks again Jennifer). I called Pfeiffer and they are the same Houston Nutriceuticals ones we take. So I just ordered some. They are just for the AFP peptizade (orange) and Zyne Prime (berry), not the no-fenol for yeast and fenols.

 

Fewer pills to swallow is always better. I just ordered some and will let you know if the taste is good. I suspect it is. This will also allow better spacing between it and the probiotic--tough to push another pill 1/2 hour later.

 

Claire

[Frank_Sm1th]

Hi all-

 

That enzyme board is indeed awsome; I've been following it for about a month now and it helps us fine-tune what I learned from the book. She also has a similar book on enzymes which I saw at our local health food & vitamin store.

 

Since we began the enzymes a coupla mos. ago, we've reduced the supplements I've been giving my older son.

 

Frank

[Caz]

I too have found that alot of the autism sites have so much necessary info. One that I have been looking at alot lately is chelatingkids2

 

chelatingkids2

 

We are about to go down this road, and wanted to know other peoples experiences.

 

Claire - interesting about the amino's - hope the enzymes make a difference for your son. We are using betaine hcl to help increase stomach acid to start the protein digestion things working. I have read that heavy metals can knock out enzymes, but I think from memory you have fixed this issue.

 

Take care,

 

Caz

[Claire]

Caz,

 

I remember your mentioning the betaine HCL now--thanks for the reminder, I will ask our DAN doctor about it this week. Do you know how that works with enzymes--do you do just the betaine HCL and no enzyme, or both in combo? Do they need to be spaced apart?

 

Did you get my earlier PM that B6 deficiency can cause low HCL?

 

I know you have been down this amino acid path sometime now. Are you seeing improvements from it?

 

Franks, after a few months of enzymes I am starting to reduce my son's supplements a little also. Keep us posted if the lower dosage seems to work.

 

 

Claire

[Guest Guest_Jennifer]

I just finished reading the enzyme book the other day. I can't remember which particular enzyme it is, but one of them increases HCL in the gut. If you are taking Peptizyde and Zyme prime you've got it covered. Hydrochloric acid supplementation isn't recommended for children. I am deficient myself, the doc had me on some, but I had to stop..it caused some severe stomach pain which continued for some time after stopping it.

 

Jennifer

[Claire]

Thanks Jennifer! The book just arrived today. My chewable zyne prime and peptizade should arrive tomorrow.

 

Claire

[Caz]

I had not heard that hcl inducing supplements were not good for kids. They were recommended to me by a doctor, and we have been really pleased with what they have done for our son. We only do a low dose though, somewhere I read that adults could take up to 6 of these tablets with each meal, and we only do one for an adult size kid.

 

Low stomach acid can cause a whole cascade of issues, not only relating to protein digestion, but also to stimulating the pancreas to release other enzymes which help with digestion of fats etc as well. It is the stomach acid levels on release from the stomach into the small intestines that determine many other factor relating to the rest of the digestive tract, so just supplementing digestive enzymes may not cause some of these other cascade events to take place. We do both, and find that works best. Thats just our experience though.

 

Caz

[mmazz]

EFG;

 

Here is the thread on enzymes

 

 

Marie

[kim]

Marie,

 

So glad you bumped this thread, for Efgh and others, I forgot about it.

We got a lost of meds at the allergist yesterday. One is Zantac and H2 blocker and

It looks like it contains aspartame. Oldest son tested positive to a whole bunch of environmental things, mostly grasses dust mites etc, youngest just 3, cats, mold and dustmites. No food allergies showed.

 

Kim

 

Sorry about the Zantac remark. It does not contain Aspartaime per pharmacist, the over the counter "effer" one may, it is sometimes added for flavor.

[mmazz]

Hi Kim:

 

FYI, I have family who work for the big pharm. companies and the more scripts the docs write the more free stuff they get i.e., vacations, show tickets, etc. So they have to write something or they'll just get the offie visit $$$ and nothing else. I am a bit suspicious of all scripts written. When I took my little one in for tics I left with a script for pulmacort (an asthma steriod). My little one doesn't have ashtma and he had the croup 2 months prior to the onset of tics- why was I to put him on a steriod? I used my common sense and threw out the script. No free $$$ for him at my childs expense. Claire once told me to be a "mother bear" when I had to and I am doing just that. So for you Kim, please "Mother Bear" and do your due diligence prior to doing Zantac or anyother med- sometimes these meds interfere with much needed vitamin absorbtion. Calling you DAN doc is a smart move. Remember the medical community is given only one tool to fix everything and we all know that a hammer is only good at banging nails and not cutting wood.

 

Marie

[efgh]

Marie

 

Great post!

 

Can you tell me the possible side effects of Pulmicort (inhaled steroid) used for asthma. My son is an asthmatic and even though I don't give him the inhaled steroid on a regular basis, I do give him when he gets an attack and for a month after that. His tics DO NOT increase due to the inhaled steroid though. My doctor assures that inhaled steroids taken on a limited dosage is harmless and in fact there is more damage to the lungs if an asthmatic DOES NOT take the inhaled steroid. But, being a member of this forum, I have my own doubts. Wish I could totally avoid it but I cannot...

 

your thoughts please.

[mmazz]

Hi EFG;

 

I know a little about asthma because my older son has asthma. I have him on an as needed basis. I did look up about inhalers, steriods,etc and I have found that the long term effect on pulmacort and even albuteral is not good. I've seen claims that state harm to the cardiovascular sysem, etc. In moderation I do these meds, as they do work and I know to well what an asthma attack can do. So I would not stay away from them, but I did find that suuplementation, the avoidance of dairy, art. colors/flavours and of course jucinng has had a profound effect on his breathing. Last virus had him on his neb. for only about 2 days where we used to be at least a week to two weeks- and no pulmacort was needed. I threw him on the neb. because I wanted to be safe instead of sorry, but he was still in a yellow zone when I put him on it. When sick his asthma always kicks in, this time it did not.

 

I've read claims about asthma being part of the mercury issue. And I read that after he received his flu shot. I gave him the shot only becasue he was asthmatic. DUH? I will NEVER do the flu shot again- Mercury is still in that vaccine. I hope my efforts of detoxing my family will destroy these alignments that seem to have become a mainstream way of life. I've read that natural detox takes a couple of years to rid the toxins that are deeply inbedded within the tissues. I pray that this can be achieved for all of us.

 

I hope I answered your question, all of this rambling I kind of lost track. Well anyway good luck and keep me posted.

 

Marie

[kim]

I think I made an error! Per Pharmacist/Zantac does not contain Aspertaime. The over the counter "effer" kind has aspartaime used for sweetening for taste. Added edit to post.

 

Kim