Multi-vite I like from Kirkman

[kim]

Claire, ad-ccl and Andy,

 

Claire, God has a special place for you reserved in heaven. As always thank you for the info on the enzymes. I have been scanning the emails from that web site-and there are a ton! I couldn't remember if I had read the enzymes or amino acics were something you shouldn't experiment with on your own-now I realize it was amino acids. It gives me hope that if I can't eliminate dairy, and I suspect wheat (he would eat pretzils all day if I let him) that there may be another way. These very limited eaters present a whole different challenge, when trying food elimination, which I agree with Andy, I think this is a key in at least youngest son situation. I'm afraid he will progress worse than my oldest son, due to this issue, and I think the sooner I can get real change there, the better. Andy, you're remark about the soy prompted me to go to the site Chemar recomm. and "there it was" my fear about the soy formula. When I read what he had to say about the damage it can cause to the immune system, I just wanted to cry. But, that is part of the reason i'm doing this, to have info. to share with my boys as they get older to give their children the best chance to avoid any part of this syndrome possible.

I do believe there is a genetic glitch that predisposes these kids. By the time they have families of there own, I hope the mainstream medical comm. recognizes it also, and stops putting a lable on it, trying to prescribe a pill and shoving them out the door. I want immunization given seperately and with the DAN proticol also-thanks Andy(hope I get open minded-daughter-in-laws) I wish I had that info. when my kids were little. I knew there were risks, but no one had ever suggested that there was even a possibility that it could be safer to break them up, and give farther apart etc. Ad-ccl, I'm always so happy to see your posts. You and I have alot in common with our situations, and you're success with youngest son is an inspiration. Could you let me know what improvements you have seen in tics/mood, with improved diet? Please keep sharing, and let me know how your progressing with middle son. Any little thing in you come up is really appreciated, since so far I'm not getting anywhere quickly with youngest. He just started the Animal Parade yesterday with added zinc at night, about 18 mgs. and I'm doing my best to keep him away from junk. I will do more reading about soy, although he probably won't drink it anyway, and keep looking for something to replace the milk with. I keep suspecting, without balancing something in his system, I'm just not going to get anywhere with this. I will try for a while on my own, and then get him to some one

(alternative MD) maybe after school is out. In the mean time I may just feed him chocolate cupcakes with puree'd (sp?) vegtables in them. We could both be happy for a day-little stincker would probably taste some thing "different" and not eat them anyway, even if I loaded them with frosting.

 

Kim

[ad_ccl]

Hi Kim,

 

So glad that you are getting something from my posts. It is my only intention in sharing the info - hoping it helps someone at sometime.

Just to clarify - I have three boys, my oldest is 6 and was diagnosed with Pandas last August. He had a SUDDEN and SEVERE onset of complex motor and vocal tics that literally debilitated him - within three days on antibiotics the tics were 90% gone. Each time we went off antibiotics tics would return. He stayed on antibiotics until January at a full dose of several different kinds. I found this site in late October - and read daily but was still hopeful the antibiotics would clear things up. By late December we realized we had to look outside the box. We started with the elimination of milk and were shocked by the difference. I have posted a lot on my New Here thread so won't repeat it all here. Ultimately to make a long story short, we eliminated the milk, gluten and eggs and the tics disappeared 100% added benefits were a much happier child, better focus at school, looking so much healthier. All of these latter things were not really a concern for us as he is a very social, smart, athletic boy with lots of friends. We just did not realize his full potential!!!! Prior to the elimination of the foods tics would come whenever he had a viral illness - which seemed constant. Since being off the foods he has been sick less and recovers faster. I think his immune system is no longer taxed with the foods so not on overdrive over reacting to every illness. Prior to the PANDAS he did have a chronic cough and an enlarged lymp node on his neck - interesting that the only thing that made both of these things go away was the elimination of the foods!! He currently has no tics.

My middle son just turned 4 - he has no tics and no behavior concerns. Just a fussy eater. He was very sick as a baby - with a serious blood infection at 2 weeks requiring many rounds of antibiotics. He was a very fussy baby - he is now a very happy, animated free spirit - but still eats limited foods. We did the testing on him as we were concerned about PANDAS for him in the future.

My baby just turned 1 - he has been happy and healthy since the day he was born - other than the colds this winter. He became miserable (much like my middle child was most of his first year) - when we put him on homo milk at one year, it took a few weeks to make the connection due to teething, colds etc. Once we took him off homo he started sleeping through the night again and being happy through the day. We have not got our testing back on him yet but I am sure milk is a problem for him too.

 

Hope that clarifies for you - I know how confusing it is with so many children being talked about on this board, and that most are boys.

 

Good Luck.

 

PS I agree with you about Claire, she has literally changed the path my son was on - changed his life and our families life for the better - Chemar has also been so helpful with her info on supplements and her success story gave me such hope. I am also so thankful that Ronna had posted on her story as I was searching for any info that would give me hope. This has been such a blessing to find this site.

[Bow]

ad-ccl,

 

Sorry about confusing your boys. Yes, it is difficult to keep everyone straight. What a Wonder Mom you must be, 3 boys! Even without Any health challenges, that's a happy handful. At one time I really wanted a third too.

 

I'm wonderinig if milk is an issue for baby, what will your alternative be?

 

My oldest son is still tic-free. Hard to know if it's the vits- -Bonnie's-12 per day and borage/flaxseed, or the benedryl or the antibiotic. However, he was pretty much tic free before starting the amoxicillian. We have 3 teddy bear hampsters that are going for a sleep over at Grandma & Grandpa's. Still looking for the source of the night time itching for oldest.

 

I'm finding it kind of curious that my boys calcium was'nt low. Maybe that's not a part of our problem.

 

Oldest had been taking supplements at the time of his blood work, and wasn't high in anything either, except B6, so who knows.

 

I totally agree about the others here also, and the selfless time and information they share.

[ad_ccl]

Hi Kim/Bow

 

Assuming you have changed your post name.

 

Regarding the baby - he along with his brothers drink 3% goats milk. It took him a few days to get used to the taste and he drinks it fine now. I am trying to limit the number of bottles he gets in a day, and hope to soon switch away from a bottle altogether.

 

Glad your older son is tic free. It really is such a guessing game with so many variables at play at once.

[Bow]

adccl

 

This site logged me in as a guest and I put in the password and screen name which I have used on a couple of message boards regarding stocks I was trading. Don't know what I was thinking I was so surprised when you started your post that way. I hadn't even realized I had done it.

 

Kim

 

The other surprise was goats milk. Have you tasted it. Maybe I bought a really awful kind. It was powdered. Maybe the fresh is better?

 

Kim

[ad_ccl]

Hi Kim,

 

I buy fresh goats milk. It is not too bad - but if it starts to go bad it has an awful taste but does not smell sour. I have not tried a powdered kind. When the two older kids started with the goats milk they only had it with chocolate Quick in it. Now my older son has it plain in his cereal. The middle one initially did not like it and liked Rice milk which I think is terrible - awful aftertaste. He now drinks the chocolate goats milk. I also found some potato chocolate milk. Almond milk is I think the least offensive. Amazing what you find when you start looking! I have been drinking goats milk in coffee sometimes and also in cereal and don't mind it but last week I had some in hot chocolate and is was going bad, it has completely put me off the stuff.

 

I would try a fresh goats milk and make sure to double check the expiration date, the one that was bad for me was still supposed to be ok as per the exp. date. It seems to have a limited shelf life compared to regular milk.

[nursepatti1]

Capsules are so much easier to swallow than tablets.  Finding a copper-free capsule was hard.  The ingredient list won't post, sorry.  Seems to me a nice basic--finally.  So many have lots of niacinamide--not good if undermethylated. 

 

Just a touch of manganese I think at least a little is still important, even for tic syndromes. But too afraid to do a lot.  Nice mix of P5P and B6.  Also, folinic acid instead of folic acid--one step further down the chain.  Not enough zinc, fine with me cuz we supplement it separately.

 

http://www.kirkmanlabs.com/products/multiv...ra_hypo237.html

 

My goal is to cut back on pills, and this is cheaper than compounding.  This won't meet all your needs, just a basic--my biggest concern is the balance of B's when supplementing individually. 

 

My issue with Bonnie's (I considered them as I searched) is too much niacinamide.  IF Pfeiffer's 45% undermethylated in ASD number applies to tic syndromes, that much B3 is bad as niacinamide 'steals' methyl groups per Pfeiffer and the www.enzymestuff.com site

 

Claire

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