Another Visit with ND LD

[JuliaFaith]

Just an update on our last visit in case there is some helpful info. for someone.

 

Our dr. says that 'mold' seems to be a big problem, so we are checking for mold around the house using test kits from Home Depot. Ds cough is gone but there seems to be some lingering fungus/mold issues that are showing up in muscle testing. Changed from Diflucan to Sporanox for treatment. We did order an air purifier from Costco which was recommended by the dr. as well. It is in ds bedroom at night and we move it to the other room that he spends most of his daytime. It was around $500 so not inexpensive!

 

Also, new antimicrobials are:

 

Neem

Virescence

Mastica

 

Not sure what these are but hoping to do some research on them.

 

Vitamin A, UNDAS for kidney support, and Green "live" clay 2x day were also added. (We discontinued UNDAS that were being taken for PANDAS dr. diagnosis.)

 

Taken off our long list of supplements/med.: Duflican; ketotifen; melatonin; and ivy calm. Ketotifen may have contributed to my son's huge weight gain (>20 lbs) and did not seem to improve his symptoms. So glad to take some off when having to add more!

 

The dr. pretty much tests all of the supplements that ds is taking every time we go in, with muscle testing. Some are discontinued and others are labeled 1-3 depending on how much the body is needing them (3 indicates a strong need).

 

FYI - Dr. said it could take 18 mos. of treatment as there is 'a lot going on and like an onion the layers will reveal themselves along the way." It seems someone else had this same diagnosis. Dr. also believes that people never really get rid of lyme and micoplasma altogether. Have heard that about lyme but not mycoplasma.

 

Those of you on this forum have provided me with so much information, I only hope to contribute as well. Thank you.

Edited January 18, 2011 by JuliaFaith

[cobbiemommy]

Mastica is used to treat H. Pylori in the intestinal tract. DS, takes it thirty minutes before breakfast and dinner. DS, has been improving in the bowel area, so I hope that this is part of that improvement.

[JuliaFaith]

Mastica is used to treat H. Pylori in the intestinal tract.

This is so interesting. Ds tested neg. for this some time ago but has had on-going extreme stomach pain. Thank you for the information! Best wishes for your on-going treatments.

[KeithandElizabeth]

Wow, it is so interesting to read about other people's lyme visits. I have to admit that I was bummed when you wrote that your MD feels that you never really eradicate lyme and mycoplasma. Our LLMD feels that you can eradicate both of these bacterias, but this is just his opinions.

 

So, is your son on any antibiotics? I know your MD practices under Klinghardt, right? I have read that Klinghardt feels strongly about getting the body strong to fight the lyme before introducing antibiotics. Are they muscle testing your son for antibiotics and he is just not showing a positive response?

 

This can be a long process and it sounds like everything you are doing with your son will really enhance his immune system.

 

Elizabeth

Edited January 19, 2011 by KeithandElizabeth

[JuliaFaith]

Wow, it is so interesting to read about other people's lyme visits. I have to admit that I was bummed when you wrote that your MD feels that you never really eradicate lyme and mycoplasma. Our LLMD feels that you can eradicate both of these bacterias, but these are just his opinions.

 

So, is your son on any antibiotics? I know your MD practices under Klinghardt, right? I have read that Klinghardt feels strongly about getting the body strong to fight the lyme before introducing antibiotics. Are they muscle testing your son for antibiotics and he is just not showing a positive response?

 

This can be a long process and it sounds like everything you are doing with your son will really enhance his immune system.

 

Elizabeth

Elizabeth--your right the dr.'s all seem to have their opinions about all of this and it is interesting to read about all the treatments. All that is really important is that the healing can happen and people can live productive, happy lives.

 

My son is not on any antibiotics right now. He does have pretty severe gut pain, so maybe that is being treated first. Your question about whether he has been Art tested for Abx is a good one and is going on my next visit notes to the dr. Prior abx (for PANDAS) have not provided any relief at all just more stomache pain.

 

Have found your posts very interesting to read and appreciate all the time you put into this forum!