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Posted

I see some slight improvements with my girl, but she is still pretty scarey looking. I don't want to give up on this PANDAS thing, because all of the meds. that the psychicatrist tried did not work. I have a question: She started abx. on Dec 4th... the Nystatin on Dec. 24th and the sprinkle of probiotics about 3 or 4 days ago. Is it possible there is still die-off occuring. Is it possible that die-off happens for a long time? We are only in to this a short time. Ugh. There is a chance that I may have asked this question before. I apoligize before hand. Things are so wild and out of control over here... sometimes I just can't think straight!

Posted

I'm by no means an expert, but in my experience die off from things like probiotics would last maybe a day, at most a week. On the other hand, it sometimes takes a while for abx to show a positive effect. You say that you are seeing some gains. Are they somewhat significant and enduring? If so, you may just need to continue for a while. Also, did you notice a downturn after the Nystatin and/or probiotics? If so, you may need to stop one or both of those and see if the gains return. Yeast can sometimes mask gains. You might need to revisit Nystatin and probiotics to de4termine whether they are sufficiently helping yeast. I know it is difficult--hang in there. If you are seeing even modest gains, that is a hopeful sign.

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