Dr Cunningham results HELP

[giulia]

Hello everybody! I posted this in the PANDAS forum but I am also putting it here in hopes that somebody might have some positive/relevant feedback...... THANK YOU

 

Hello!

I am new to this forum, although I have been posting on the TS for some time. I had my DS tested at Dr Cunningham's lab and results place him in PANDAS range, as follows. However, I am not sure what I should do next, and how to interpret this. There is nobody locally that will take this seriously, I called a local ped. Neurologist and was told that he treats PANDAS with psyc. meds just like for regular TS..... not sure what to say about that. I assume I should be looking for a PANDAS expert out of town (I live in VA). Can anyone offer any suggestions? **THANK YOU**

 

 

Kam Kinase 145

 

Anti-Lysoganglioside 2 hours

patient 1280

normal range 80-320

 

 

Anti-Tubulin 2 hours

patient 4000

normal range 250-1000

 

Anti-Dopamine 1 2 hours

patient 2000

normal range 500-2000

 

 

Anti-Dopamine 2 2 hours

patient 16000

normal range 2000-16000

[tpotter]

Living in VA, I would suggest Dr. L (peds neuro) in MD, but I have heard that she is not taking new patients anymore. It might be worth a telephone call to her office, to see if that's changed. Otherwise, I would suggest you go a bit further to Dr. B. in CT. He is an immunologist, and since this is an autoimmune disorder, it certainly makes sense (and he's wonderful.)