tpotter Posted January 4, 2011 Report Posted January 4, 2011 I couldn't figure out how to post this on more than one forum, so I've cut and pasted it here. I suddenly developed thumb pain after starting doxy this past month. When I mentioned it a few weeks ago, my DH said that his have also been hurting, but his have hurt for several years, and he is diagnosed with RA (although he's also diagnosed with Lyme, and is being treated for it.) Today, when I mentioned it again, my DS 15 said that his has been hurting off and on, but can't remember when it started (his memory is pretty bad since getting sick with PANDAS/Lyme 7 years ago), but I have never heard him complain about the pain prior to starting treatment for Lyme. He started his tx 2 months ago, but got off the doxy 1 1/2 months ago when he came down with pancreatitis. He is taking bicillin injections (has had 1 about 1 month ago, and is scheduled for another this week) + flaggyl (200 mg/day 1 week on and 1 week off...just started this past week) + was taking azith (500 mg/day until 1 1/2 weeks ago,) but switched to Augm XR (2000 mg/day), and is on some antiseizure meds, as well. He also takes Nystatin. I currently take doxy (400 mg/day) + azith (500 mg/day). I also take Nystatin. We both also take an assortment of vitamins, fish oil, etc. Any ideas? It definitely feels like there's swelling, and I just started back on the nystantin 2 days ago, because I could feel my whole body bloating up like it does when I've got yeast. Oh, we also both take saccromyces boullardi and probiotic pearls. Thanks.
T_Mom Posted January 5, 2011 Report Posted January 5, 2011 (edited) -- Edited January 5, 2011 by T.Mom
T_Mom Posted January 5, 2011 Report Posted January 5, 2011 Hi T-- I am sorry you are going through this thumb issue now. I do not know if it could be Doxy related, but would be interested to know what you find out. Our youngest is now on Doxycycline. Also on Augmentin. I wanted to ask about your son's reaction--was the pancreatitis due to the Doxy alone or other issues do you think?
tpotter Posted January 5, 2011 Author Report Posted January 5, 2011 It's too bad I couldn't figure out how to cross post this, because both forums can't see the other's answers. But, several people on the Lyme forum have mentioned that they also had the thumb pain, and also mentioned the deep leg pain, which I have also gotten. They also mentioned toe pain that went away (although my first thought would have been gout, with that.) The pancreatitis could have been from any of 2 antibiotics and/or 2 antiseizure meds. Since the doxy was the last one on, all the docs (including ER, LLMD and Dr. B.) all agreed that doxy would make the most sense to pull him off. The pancreatitis got better (along with also being on a liquid diet for quite a few days...it was awful.) We don't know whether it was from the doxy alone or maybe it just threw everything over the top.
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