Swedo video

[norcalmom]

I watched this for first time around a year ago. Today I was looking for something I thought that Swedo said (didn't find it in this video) but the video was better second time around. First time I watched the whole pandas thing was relatively new for me, so it was overwhelming. This time I caught more of the finer points. I know its probably in some of the pinned materials, but thought I'd post it here for anyone new, or anyone that wants a re-fresher.

 

It is funny because there have been some post on "why the controversy? "do they get better?" and "Cam K anti-neuronals and what they mean" lately. This video touches on many of these topics. See the last 4 minutes for "what's the controversy about? And is pandas "real" its int he Q & A section.

 

The video was taken at an autism conference at the Mind Institute.

 

http://media.mindinstitute.org/video/toxconf/mov/swedo_2006_toxconf_hi.mov

 

PS -one of the "finer" points i noted was that she said it is likely that pandas kids, like SC kids, have a strep exposure and the first time they react 5-9 months after the strep ..thats right, FIVE to NINE months (so much for titers nine months later!). Next exacerbation will be weeks, and after that days, after that the pych symptoms will show up before strep culture positive.

 

Another "finer" point - Kirvan is from UC Davis, I didn't know that.

[MomWithOCDSon]

Thanks for posting! I had never seen this, and though it has many similarities to the speech I did have a chance to see at the 2010 Autism One Conference, it hits on a number of other items, too, that she was too rushed to give much time to at this later speaking engagement. Now I've recorded the link (and made some notes) to share with our healthcare professionals, as well, since this is, I think, though a bit more dated, a more comprehensive outline of her research and findings.

[EAMom]

Hmmm. I couldn't get the link to work.

 

I wonder if this one works:

http://www.ucdmc.ucdavis.edu/mindinstitute/events/toxicology_recorded_events.html I see now you can listen to it from Itunes...I'll put it in my phone and listen to it again, it's been a while.

 

Also, check out the "panel discussion" Q & A....that has some PANDAS stuff in it too I think.

Edited December 17, 2010 by EAMom

[browneyesmom]

That's an excellent video, even if it is a few years old - I've seen it a couple of times & it's very informative! Thanks for posting... oh, and btw, the first link does not work for me either, but the second link does take me to the page of speakers. If I try to open in a new window, it won't work, but if I click directly on Susan Swedo video, it opens fine. Thanks again!

[norcalmom]

You can also link to it from the pandas network homepage..its the speech at the Mind Institute- http://pandasnetwork.org/

 

same as one from EAMom - thats for finding the other link - and noting the panel discussions (I've never seen that one before)

- I'm going to listen to that now!