Plasmapheresis questions

[GraceUnderPressure]

Since my ds18 has had sx's onset around age 4 and steadily worsening over the years, doesn't that mean that plasmapheresis is a better option for him than IVIG?

 

Is pex as expensive as IVIG?

Are the risks & followup sx's pretty much the same?

 

Is there a dr in TX who does pex? (We are near Houston; we have been using Dr. Rao in Dallas)

[peglem]

Since my ds18 has had sx's onset around age 4 and steadily worsening over the years, doesn't that mean that plasmapheresis is a better option for him than IVIG?

 

Is pex as expensive as IVIG?

Are the risks & followup sx's pretty much the same?

 

Is there a dr in TX who does pex? (We are near Houston; we have been using Dr. Rao in Dallas)

Dr.L is the only one I have heard of who uses PEX.

I don't know if PEX is a better option in long term cases- interesting question.

[JAG10]

Dr. Elia at CHOP uses pheresis as well, but last I'd heard only for severely debilitating, sudden cases.