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Hello,

 

I just posted on the PANDAS forum re: "Falling apart" and we seem to be doing so for two days now. Huge raging, not sure if the cause is strep (re)infection, suspected yellow dye in Lay's potato chips, too little 5-HTP, or Lyme growth every 3-4 weeks. We saw Dr. R in Plano which gave us a chance to test via ELISA for Lyme, bartonella, and babesia, but someone on the PANDAS forum said ELISA doesn't yield good results. I couldn't get enough info from Dr. R about which one would give us the best info. He said it was a financial decision and ELISA was good enough.

 

What advice do you folks have? I didn't research ELISA beforehand as perhaps I should have. We didn't do the Cunningham test because I thought it really only reveals IF there is an infection, but not anything about specific co-infections. My despair has passed for the moment, and I'm trying to formulate a plan. I will call Dr. N in Denver again (didn't hear back after leaving a message on Nov. 11) to try to get into see him. It's just hard to wait for the test results which won't be ready until after New Year's. And now I hear they might tell us nothing? I'm sure I've read or gotten good advice on this before. Hopefully you folks might point me in the right direction again?

 

Thank you so much,

SearchingMom

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