IVIG is great

[JAG10]

Hi - just thought it worth a quick mention - there is an autoimmune pancreatitis. It isn't usually acute but our kids aren't 'usual' :-)

 

It normally presents chronically but good news is that unlike the usual pancreatitis it is more treatable and responds well to steroids. Not saying this is what your son is dealing with but thought it was worth throwing out there, in case you hadn't heard of it/considered it.

 

:-)

 

 

I'm checking that out right now. He has had tons of episodes of unstoppable nausea, and I asked his pediatrician yesterday if maybe this was a chronic problem, not acute. She wasn't sure. I am also planning to take him to the hospital for probable admittance today if the pain doesn't ease up. His neck is stiff (but when I push, he gets chorea in it), and he has been fighting a very low grade fever since yesterday. The pediatrician put him on a completely liquid diet, and the child is miserable. But, I'm going to spend a few minute checking out this autoimmune issue, before I head out for 2 hours of work (after which I check back with him, and if he's still not well...) I'll forward whatever I find to the pediatrician, and see what he has to say about it.

 

Interestingly, he was on steroids 2 days prior to 2 days after IVIG, and it was after that that the symptoms came on. He felt GREAT until then.

 

Trudy-Your boys are unfortunate to have these health challenges, but sooooo fortunate to have a phenomenal, bright, persistent mom like you!!! What a blessing your are to those young men!!!