Worst night ever last night. Seems sick today.

[ajcire]

Tantrums, do you still do the gluten free diet with him? Did you notice any changes with it?

 

Yep... and now he's perseverating on eating whipped cream and I see it brewing. Doesn't like ANYTHING else we have to eat in the house of course and can only eat the whipped cream.

 

Fun times...

[tantrums]

We stopped the GF diet after about 4 months. Suddenly, it in itself became a battle for him. He would announce he wasn't eating anything if we didn't give him gluten. I kindof laugh at that now, but really?! He has always had issues with control over food. I hadn't seen any benefit from it so I stopped it shortly after that. Didn't tell him specifically though Just eased back in.

 

He was overall, better yesterday. I have a feeling if he hadn't started that omnicef last week, we would've been in a nightmare right now. I have a feeling that saved him. Friday night was the worst I'd seen him since his initial onset.

[kimballot]

No - he'd been on azith about 6 months ago with no problem. This time, it was the first pill that did him in. 12 hours later, he was covered in severe hives that took nearly 3 days to go away. I actually had the epi pen in my hand at one point

 

Tantrums - sorry you are going through this ... but it sounds like things are picking up.

 

Have you thought about trying (or adding if you can) any of the natural antibiotics folks talk about - like olive leaf extract? I don't have experience with it, but you may want to start looking into it.