who's on the diet?

[Johnsmom]

Just wondering if any of you have your kids on a diet and why? Did a doctor tell you to? Did a blood test show intolerances?

 

thanks

johnsmom

 

p.s. And no we are not giving grilled cheese sandwiches yet JAG10!!! Tee Hee!

[Suzan]

We are (although I don't do a super great job of keeping the cf completely out. That's a hard one for me!). My dd's show gluten and dairy intolerances on blood tests. They improve a lot with those foods taken out!

 

Susan

[Johnsmom]

I was strict for 3 years and now, every so often, I let him have a little dairy. (with an enzyme of course)

 

 

We are (although I don't do a super great job of keeping the cf completely out. That's a hard one for me!). My dd's show gluten and dairy intolerances on blood tests. They improve a lot with those foods taken out!

 

Susan

[trggirl]

We are corn, dairy, and gluten free. We did allergy testing and she came back sentitive to all these although the gluten sentitivity was lower than the others. We have been on this diet for around one month.

[EmersonAilidh]

Meat & glutenfree. No blood tests. I used to throw up all the time, & cutting out meat stopped that completely (haven't done it a single time in seven years). Cut out gluten when EmmaLilly on here recommended it. It's done WONDERS for my GI issues. Suspected Ulcerative Colitis or Crohn's. No tests yet though.

[LaurieVK]

Is there a correlation with PANDAS and dietary sensitivities?

[EmersonAilidh]

Is there a correlation with PANDAS and dietary sensitivities?

 

Lots of P.A.N.D.A.S. kids have GI issues. I'm not sure how many of those are due to sensitivities, but I know a whole lot of us do also have sensitivities. I don't think artificial things like dyes & sugars are good for any kid, but I think they're especially worse for kids who have health problems. I try my best to stay away from dyes & sugars, but they're not completely cut out.

[JuliaFaith]

We are gluten-free. My son had 3 mos. of stomach aches last year (b/4 PANDAS diag) and this diet made him feel fine within a week. He has been tested for gluten/dairy etc. and has shown no sensitivity to any of them. After the illness that touched off PANDAS his stomache has been non-stop bad (constant pain and nausea-worse after eating).

 

I went on the diet just because it was easier and feel soooo goooood and my head feels clear for the first time in years. Also, lost weight immediately and can pretty much eat whatever now (except gluten). Another totally unexpected reaction was my husband's cholestrol level dropped for the first time in years way down! He still has a bit of gluten sometimes.

[butterflymom]

=

Edited October 5, 2015 by tampicc

[Johnsmom]

Julia,

 

How many points did your husbands cholesterol drop? My husbands is really high!

 

Is your child still on the diet?

 

Thanks,

 

Ann

[LaurieVK]

Thank you for your reply! My ds has always had constipation/encopresis problems, poor kid. If it's not one thing, it's another! But he's getting better. How do you treat your PANDAS, if you don't mind my asking? It looks like you've had it for a long time.

 

Laurie

 

Is there a correlation with PANDAS and dietary sensitivities?

 

Lots of P.A.N.D.A.S. kids have GI issues. I'm not sure how many of those are due to sensitivities, but I know a whole lot of us do also have sensitivities. I don't think artificial things like dyes & sugars are good for any kid, but I think they're especially worse for kids who have health problems. I try my best to stay away from dyes & sugars, but they're not completely cut out.

[jjl]

We put our son on the GFCFSF (dye free) diet eight yrs ago. He has autism and the docs recommended it. At 2 yrs old, he drank milk like an addict and had rashes all the time. Within one week of removing milk, we saw the biggest withdrawal symptoms you could imagine. Kind of like what parents on this forum refer to as rages. Then after a week, the rages were all gone and he began sleeping thru the night for the first time. Dairy will clear your body in a week, but it takes months (6 to 8 months) for gluten to clear your body. I know of numerous parent reports (in the autism community) that tried putting gluten back in the diet only to see symptoms creep back in over a few months time. When the school told us last year that our 9 yr old got a hold of someone else's cookie, we dreaded the days and weeks after knowing he would have GI issues and sure enough he did. This happened a couple times. I know autism is different, but in many ways it is the same, especially when it comes to immune issues. And if the autism is caused my lyme, then there are many more similarities. It is not easy keeping the diet. It takes a commitment and it has helped our sons from having tougher symptoms than they already do. John L

 

Just wondering if any of you have your kids on a diet and why? Did a doctor tell you to? Did a blood test show intolerances?

 

thanks

johnsmom

 

p.s. And no we are not giving grilled cheese sandwiches yet JAG10!!! Tee Hee!

[matis_mom]

DS13 is on it too. I just started him on the Specific Carbohydrate Diet, which is brutal, no grains whatsoever. Then we did the sensitivity testing and found out he is indeed allergic to wheat, gluten, dairy, and fish. We did see some improvement on the diet. Now we are just doing GFCF for him. I am trying really hard to transition everyone into it, but it's not easy.

Our LLMD recommended to move everyone to GFCF.

About the cholesterol dropping, it makes total sense. When you cut out gluten, you cut out a ton of process food. Taking out refined sugars and starches will definitely have a positive impact in your cholesterol levels. Don't ask me to explain the scientific part of it, but apparently "fat" is not the culprit when it comes to cholesterol... it is SUGAR and starches.

If you are going to give it a try, be prepared! It takes great commitment. I found it easy to not buy the junk, just a hard time finding enough stuff to replace it with! Veggies don't feel you up as quickly as bread/pasta, so I find they are going through a lot more food!

[T_Mom]

This is a fascinating article -- Dr Fasano, University of MD, has researched the immune response in Celiac Disease.

 

Gluten intolerance basically--which then "sparks" off auto-immune reactions.

 

T-cells, etc. affected...article from Scientific American.

Wondering if this is worth a try for our kids--

 

http://somvweb.som.umaryland.edu/absolutenm/articlefiles/837-Fasano%20Scientific%20American%20article%208.2009.pdf

Edited November 16, 2010 by T.Mom