OCD in younger kids

[ajcire]

Tampicc, you described a lot of things I also saw with my ds at that age and some still continues.. but just like you described it does not impact his life really and to anyone watching from the outside he is just a very bright child and bright child often seem quirky... Knowing what I know now I do attribute it to pandas.

[thereishope]

My son has had 3 strep triggered exacerbations. We caught them all pretty early. We've been blessed thet he has recovered with antibiotics, a steroid burst in his worst one when he was threatening to go to heaven and not eating, and a whole lot of time. In his third exacerbation, he did have residual OCD we had to overcome as well.

 

 

If you haven't checked family members yet, do so. We also found out my two other children do not get symptoms of strep, yet they both tested + on a rapid during my son's third exacerbation. We tested them every time he had strep. When one has it, we all go in. Also, retest anyone who has strep 3 weeks later to see if infection has cleared. If the PANDAS child is still on antibiotics, they may get a false negative, but there are kids on here that have tested + even on abs.

 

 

 

Positive....he's better now. None of that remains. Never give up hope.

 

Wow, thanks so much Vickie! They do sound similar. Do you mind sharing what treatment(s) have led your ds to wellness? We are just at the beginning of this journey. We only heard about PANDAS in August and I began to realize how much of ds's behaviour is OCD. He has high ASO, and cunninghams at 176, so now I'm convinced we're dealing with PANDAS. We just started prophylactic antibiotics (500mg/day amoxicillin, which is NOT helping). We have a consult with Dr. T on Tuesday and I"m anxious to know what he will suggest.

Edited November 6, 2010 by Vickie

[momcap]

Thank you Tampicc and Vickie for your help and advice. I'm anxiously awaiting Tuesday to see what Dr. T recommends. Our pedi says he is open to Dr. T's advice. I sure hope so. My ds7 is more or less chronic PANDAS. He has episodes that are much worse, but in between he's miserable too. I don't know if that is because it's been going on for 4 years, or if he has another underlying condition (maybe lyme???). We're looking at all of that too.

 

If you haven't checked family members yet, do so. We also found out my two other children do not get symptoms of strep, yet they both tested + on a rapid during my son's third exacerbation. We tested them every time he had strep. When one has it, we all go in. Also, retest anyone who has strep 3 weeks later to see if infection has cleared. If the PANDAS child is still on antibiotics, they may get a false negative, but there are kids on here that have tested + even on abs.

 

I had the whole family tested in September and ds5 & ds7 both cultured positive for strep. Ds5 with no symptoms at all, ds7 was complaining of feeling sick and in PANDAS exacerbation - but no sore throat or fever. I've had ds7 retested twice - both negative, but he's been on antibiotics. I haven't had ds5 retested because the doctor has declared him a carrier and refuses to do anything further for him. I guess I could bring him to a walk-in and beg them. I'm anxious for Tuesday's consult and we'll go from there.