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Posted

Finally got dd10's camK score: 140

I guess that is lower end of PANDAS range? (ds12 was 168)

Definitely something not right in there.

We have an appointment with an LLMD who also sees PANDAS patients lined up for Friday and we'll take it from there...

Posted

My ds's camk was 141 when I had it done. Dr. Cunningham told me that it fell in the mid pandas range. (I get that it could still be lyme, just mentioning where she said it fell if it was pandas)

Posted

My ds's camk was 141 when I had it done. Dr. Cunningham told me that it fell in the mid pandas range. (I get that it could still be lyme, just mentioning where she said it fell if it was pandas)

Thanks for the reality check!

She does not show any "abrupt" stuff, so I don't know what exacerbation would be like for her. It's just overall anxiety about certain things.

I guess this just tells me her brain is definitely overfiring, can't wait for our appoinment next week!

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