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Posted

Ok- I have made an appointment to (hopefully) rule out lyme. My kids are still doing well, yet are still reactive to illness with minor flare ups of pandas symptoms. I, however, can't sleep well at night leaving a stone unturned, especially since we have always lived in lyme areas. I made an appt with a doc that was personally recommended by Dr Brian Fallon of Columbia. Dr. Ernest Visconti. Apparently he is also pandas knowledgeable. Please pm me if you have any specific knowledge of him.

 

Thanks!

Posted

I share your sentiment..... 'no stone unturned'. I originally had this feeling of not wanting to go to another Dr. but was so grateful we were pushed in this direction.

 

I hope for your families sake it simply PANDAS but if there are additional co-infections still remaining they are very treatable.

 

I wanted to post the attached link for alternative choices. http://www.latitudes.org/forums/index.php?showtopic=10640

Posted

Hey Eileen. Im glad you're exploring all possibilities. Haven't spoken to you in a long time. I have been following your posts and I guess you mine. This Lyme journey has been one heck of an experience to say the least. Let us know how it goes. I have you in my prayers.

Jodie

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