How long before tics subside?

[NewBeginnings]

Just a reminder: The TICS can flair for an extended period of time when treating Lyme. Our son has congenital Lyme (previously treated for PANDAS) and was having back to back TIC free days prior to starting Lyme treatment protocol. It took him over 9 weeks of Lyme treatment to return to baseline. During that 9 weeks we saw a huge resurgence of TICs. So, much worse for an extended period of time. We anticipate our son being on antibiotics for at least another year.

 

I would have to agree with Pacific Mom and investigate finding a good LLMD to unravel to true underlying issues that might have resulted in your son's TS diagnoses.

 

-Wendy

 

 

Thanks for sharing this, it's good info to know! I wasn't really sure what to think about his tics coming back and staying for so long.

[sf_mom]

Those TICS are telling you the LYME/co-infections are still there. I know its hard to watch but focus on DETOX..... They do go away. I should know, we've been there and back several times with the change in treatment protocol.

[NewBeginnings]

Those TICS are telling you the LYME/co-infections are still there. I know its hard to watch but focus on DETOX..... They do go away. I should know, we've been there and back several times with the change in treatment protocol.

 

Makes sense.....I've noticed they calm down a lot after an epsom salt bath. I need to increase his detoxing more. Thanks a lot. I really appreciate the info.

[PacificMama]

Any advice on finding an llmd?

 

Lisa

 

To find a doctor, see this thread?

http://www.latitudes.org/forums/index.php?showtopic=10543

 

What part of the country are you in?

 

The llmd's tend to have long wait times, so please schedule an appointment as soon as possible.

 

How long is the doxy prescription for?

Edited October 27, 2010 by PacificMama

[4Jack]

Thank you all so much for the good advice. The doxy is for 4 weeks (10 more days to go). Not sure that is enough but I already asked my pediatrician to increase from 3 to 4. I have not yet gone to a llmd. I contacted lymenet and have treatment guidelines from ilad. We were doing many of them anyway for his TS/OCD. I have not yet decided on a llmd in NJ. I think I may try to get on the waitlist for Dr. C in PA and then try to find someone sooner/closer. I am eager to see the test results because I think they may help better understand his TS. Does anyone have experience with an llmd in NJ?

Does anyone have a perspective if I should first go to a llmd or an expert in PANDAS? Will a llmd explore down the path of PANDAS?

Edited November 11, 2010 by 4Jack

[lyme_mom]

I got the small pills the first time and they didn't really help much but then when I went to pick up my refill I spoke with the pharmacist who said that the pink ones are more for skin issues and they would have to be special ordered (he just didn't have any at that moment) so I went with the blue ones. I have had more herxing like symptoms since I started them a couple of weeks ago. Hmmm, maybe people react differently to each type of Doxy.

 

I couldn't take the pink doxy and lay down but the blue ones don't seem to bother me. Weird.

 

There r also two versions of doxycyclene. I took tiny pink pills and once I got large blue pills when I picked up a refill. I was told that the bigger pills are considered more effective Or better absorbed but they made me feel sick so I switched them for the pink pill. It got me well so it worked just as well.

That's interesting. I think you must be right. I have a feeling that the pink ones are not as strong but they seemed to work for me. The one medication that made me herx the most was Mepron. Boy that made me so tired that I had to stop it after five days and take a break b/c I was so weak and tired. Everyone is different and has different bugs.