does your kid do this?

[SarahJane]

Does anybody else's kid out there do what I call the slide whistle? It's a loud, piercing scream that sounds simliar to a slide whistle or a whacky type of whistle. He incorporates it into some play, but lots of other times he just does it. And sometimes it's when I've asked him not do it because it is literally cutting into the middle of my brain. That's usually when he goes "hey Mom...<insert slide whistle sound>." On purpose? Or is telling him NOT to do something the trigger that makes him do it? Hard to tell...and the "hey Mom" preceding it really drove me bananas. AND the day he was watching a show & they were using a slide whistle and then he went rummaging around & found his slide whistle & was alternatively using the whistle & making his own noise & using a regular whistle...oh, that was fun. Fortunately, that was short-lived. (Reminds me...I should go find that thing & hide it!)

 

Wowza. Bad day. Tantrum/rage at new doctor. DS's fine now. It will take me all day to recover. He was literally fine (PANDAS-y fine...hyper, active, bouncy, but talking up the other kid in the office & looking at fish, etc...) until the nurse called our name and then BAM! 10 minutes to get him to exam room with him full prone on the floor at times, trying to run from me, screaming, badmouthing, etc...and then the exam didn't go any better with him being disruptive the entire time. I guess the doctor is still interested in having us as patients. (Need to get my records sent there now! NO takesy-backsies.) I did have to leave without paying since ds was throwing such a fit. (He wanted to leave, but when time to go, of course, then he didn't want to leave.) I held it together until the elevator doors closed while I carried him out & then started sobbing. Then it was at least half an hour to get him into booster seat & buckled. We're on day 3 of steroid burst we're doing to try to get relief from symptoms...thought it was working yesterday when I was able to take him to a play at the children's theater. (REALLY! He was restless but made it thru the hour-long play.) Today, I'm not sure. IVIG next month. And of course that carries no guarantees. Whew.

[momcap]

My son does a strange whistle-y sound that I'm sure is a vocal tic. I've heard it described as "hooting, screeching, screaming," etc. by his teacher and principal. I have only heard it twice at home. It is so loud it is painful.

[norcalmom]

If the whistle is a comulsion/tic - mentioning it may trigger it. Mentioning anything that is a tic/compulsion to my son makes him do it (or did - prior to ivig).

 

I think the steroids for many don't kick in until the very end of the burst (you are doing 5 days?) up to a day or two days after...and in the mean time, can have the "regular" side effects of making them hyper. Hang in there, and keep us posted!

Edited October 25, 2010 by norcalmom

[SarahJane]

Yes, I consider the slide whistle a vocal tic. It was a sound that he used to do sometimes when he's playing (sound effect from some show), but it's become a tic now.

 

And I think that his impulse control is so low at times that telling him NOT to do something puts it in his mind & does makes him do it...no matter what it is whether it's a compulsion or not. I'm a parent tho' & a big part of our job description is telling our kids not to do something. Maybe that's my thing...the more I know I shouldn't tell him NOT to do something, the more I do it, the more he does what I told him NOT to do, and so on and so on...vicious circle. Yes...day 3 of 5-day burst to try to reign things in a bit prior to IVIG. Still need to do the immunoglobulin tests...that's going to be a blast. I think at the dr's office he might have gotten a little freaked due to another mother saying her daughter was getting a flu shot even tho' I reassured him that he was NOT getting a shot. (I held my tongue & didn't go into a sermon with her. Heck, last year I still believed in them.)

[ajcire]

edited cause I changed my mind

Edited October 25, 2010 by ajcire

[butterflymom]

=

Edited October 5, 2015 by tampicc