If it were Lyme, would DD improve with the separation?

[FallingApart]

Reading your posts on Lyme has me thinking that way. I have my own, unexplained health issues that made the docs question Lyme. But the tests originally came back neg. If I or one of my daughters have Lyme, would we be seeing this improvement in our PANDAS daughter drom the separation we are doing right now? I am not up to speed on the Lyme thinking to know this. Our PANDAS DD has improved during her removal from our home. She is not entirely recovered, but much improved.

[tired mom]

I don't know what your daughters symptoms are but am glad to hear she is showing improvement. Having a carrier in the house must be difficult to get a handle on things. My daughter stays at my mom's when things seem to sprial out of control.

It seems her OCD is much worse at home and when it is out of control she removes herself from this enviroment and finds a sense of peace at my mom's. Her symptoms have always been under control when she was anywhere else then home

[PacificMama]

Lyme itself (that is specifically borrelia bacteria) would not improve by removing the other child (who you are saying is a strep carrier). However, as many here are finding, lyme and other tick borne infections can be at the root of what would be called a multi-infectious person.

 

Once an immune system takes a hit from pathogenic infection, it often begins the process of that person taking on additional infections – bacterial, viral, yeast, mold issues, etc. – that were not part of original infectious transmission from the tick. Strep can be one of these infections that takes hold. So some people here have found that while their child had strep, and strep exposure seemed to trigger neuropsych symptoms, what they had at the root of their problem was a pathogenic infection. (None of this is novel in the lyme world by docs, patients, on the lyme board postings, etc).

 

I’m guessing that you are saying that your PANDAS child does well when removed from her sister, not specifically when removed from your home? I only mention that as possibly mold or something in your home may be contributing to the trigger?

 

Also worth noting, as it seems to be a source of misunderstanding, is that the Cunningham test is NOT diagnostic of strep specific PANDAS. The test is only diagnostic of high CamK II, and the presence of autoantibodies, that indicate a particular autoimmune process is occurring producing a certain symptom set. As Dr. Cunningham has noted, strep is not the only infection that will do this. Lyme can as well. What else? There is a list of people here whose child tested “positive” on this test, and ultimately tested positive to lyme as well.

[Familyof5]

Hi there, I would concur that if removing the child from the environment produces positive results in symptoms, you should look hard for mold in your home. Especially if more than one family member is ill with unexplained symptoms. I removed my entire family from our house when we discovered mold was causing all of our health issues. All three of my children have motor and vocal tics and other horrid health issues that improved drastically when we finally removed them from our home.