anyone send a letter to classmates parents?

[pandasstl]

Wow, my son has no fear of any other child knowing. After months of high dose antibiotics and IVIG, he has a new life and is happy to tell anyone not to get near him if they have a sore throat. He is 7. He has offered to his teacher to tell about his condition so others will know and the children will know how important it is to him that they tell their parents if they have a sore throat. He knows the potential consequences of coming into contact with strep and has no qualms about telling anyone with a sore throat to stay away. Our school had a child in an older grade report with strep, they called us immediately and we made sure he stayed clear of any combined classes and I picked him up 5 minutes early to avoid the dismissal crowd. We are very outspoken and open about PANDAS for his protection.

[Kayanne]

The school principal at my son's Catholic School sent home a letter to all the first grade parents. It stated that a child in the class room has an auto-immune disorder associated with strep. It said that this child may not get any symptoms of strep so that it is very important that all strep cases are reported to the office so this child can go to his pediatrician and get testing. She also stated that this condition is absolutely not contagious.

 

It has worked out wonderfully. The office has called me with every case of strep (5 so far this year). My son, who is in remission, is on 1000mg of augmenting per day and has had no problems.

 

I am sure that some of the parents even threw in some prayers...that's what is so great about Catholic school.

 

My other son who has PANDAS go to public school. He became so disabled with pandas that he needs the special education of public school. The principal at that school is equally as fantastic. She actually showed a video of my son to her graduate school class to teach them about pandas. She is showing my son's video to the entire school at teachers in-service day to educate them all about pandas.

 

I am very lucky.

 

This is incredible...when did she tell you this? I Love that school!

[PhillyPA]

Kayanne - She told me about it in the beginning of the school year. She asked my permission to show the video at in-service today. She also told me that her graduate class had 25 teachers in it, all working toward a masters degree. She said the teacher's were shocked. Not one of them had ever heard of PANDAS.

Edited October 15, 2010 by PhillyPA

[airial95]

Wow, my son has no fear of any other child knowing. After months of high dose antibiotics and IVIG, he has a new life and is happy to tell anyone not to get near him if they have a sore throat. He is 7. He has offered to his teacher to tell about his condition so others will know and the children will know how important it is to him that they tell their parents if they have a sore throat. He knows the potential consequences of coming into contact with strep and has no qualms about telling anyone with a sore throat to stay away. Our school had a child in an older grade report with strep, they called us immediately and we made sure he stayed clear of any combined classes and I picked him up 5 minutes early to avoid the dismissal crowd. We are very outspoken and open about PANDAS for his protection.

 

I think that it's great that your son is so comfortable to be able to speak out openly about it. I hope some day, when my son is old enough, that he has the courage to be able to communicate that way!