Met with psychologist-she believes

[cobbiemommy]

Tuesday, I was fortunate enough to get in to talk to a psychologist in my hometown so that she could help DS work through some of his anxiety and anger about the Lyme/Pandas diagnosis. The reason I picked this particular psychologist is because when we originally sought help for DS, she is the only one who was sure that he did not have Aspergers. Now mind you, we went to some pretty respected doctors and hospitals along the way that said he did! For several years, I thought she had been wrong-that all of these MDs, therapists, and major hospitals were right.

 

She did not remember me but I filled her in on the past six years and she got up to speed pretty quick. I told her about the allergies, the rashes, the psych drugs, the GFCF diet ######, the trips to New York, Chicago, Columbia, MO and all the conflicting diagnosis. She totally believes in the body-mind connection. That kids act poorly not to act out but because they are in pain or don't feel good. She said, "You have been on quite a journey!" These are the exact same words I tell my friends. Her approach is practical, no-nonsense and I think I am in love!

 

She shared her personal story that spanned eight years I believe. Her daughter had been a National Merit Scholar and extremely bright when suddenly she began to hear voices, have visions, and became terribly anxious and reclusive. Docs kept telling her that she had schizophrenia. Mom and Dad, who is also a psychologist, kept insisting that was not right. She said, "I know my daughter and this is not schizophrenia." Maybe because they have PhD and not MD, they were not believed. Sound familiar????

 

Finally, after many horrible psych meds and doctor visits, they ran a sleep study. The daughter had severe narcolepsy. She was having an elongated dream state at the beginning of sleep that made the dreams seem like voices or God or whatever. This was happening at all hours of the day and the daughter was not even aware of it! Now with proper medication, the daughter is a bright productive member of society. She works with children. So awesome.

 

Didn't Emerson mention that narcolepsy is tied to strep? I couldn't remember the exact connection. Anyway, we have traveled thousands of miles seeking help and this great counselor is literally 10 miles from my home and she accepts our insurance. Now we have the proper medical help-three great MDs on the case and a wonderful counselor who totally believes in everything that is happening. I feel very blessed.

Cobbie

[Megs_Mom]

Wow, what a great story. This brought tears to my eyes. Thanks for sharing your story - and hers!

[EAMom]

Yup, Emerson has narcolepsy, and it is tied to strep (somehow).