Sick, Sick and Sick again

[Megs_Mom]

I apologize for not knowing this about your son's story - but has he been checked for an immune deficiency already? Getting sick all the time would be a sign of an immune deficiency. You'd need to go to an immunologist for a full battery. We used to discuss this a lot on the board, as quite a few kids did have a deficiency. Let us know if you need the list of tests - I have those somewhere, as we ran them a year ago.

 

Can I get that list of tests? I need to request a full immune work-up, but if I don't ask for specific tests I don't think I'll get anything useful (as has been my experience so far). Thanks!

 

Sorry for the delay - just seeing this. If you call local allergy centers, and ask if anyone on their team is an immunologist as well as an allergist, you may find someone more knowledgeable. I started by simply telling her that our daughter was sick a lot when younger, but she ended up being receptive to PANDAS. She was recommended by another PANDAS mom, so she'd already been educated. If you can't find this, then you could give this list to your ped and just ask for the tests. It will leave you a little in the dark on interpretation however.

 

Thyroid Panel

Thyroid Antibodies

CBC with Diff

Sed Rate (ESR)

Immunoglobulins, Quantitative (IgG)

Ceruloplasmin

Rheumatoid Factor (RA)

ANA - Anti Nuclear Antibody

Cold Agglutinins

Diptheria Antibody, IgG

Cryoglobulin Evaluation

IgG Subclass 1, 2, 3, 4

Infuenza A Virus Ab, IgG

Influenza B Virus Ab, IgG

S. Pneumoniae Serotypes, IgG

Tetanus Toxin Ab, IgG

ANA Titer & Pattern.

 

we also ran seperately, Celiac Panel, and some vitamin levels. The above is around 11 vials, so you may want to spread it out over a few days.

Edited October 4, 2010 by Meg's Mom

[pixiesmommy]

Re- the mono thing. When I had mono in high-school, they also told me that the mono test was only about 50% accurate and there is really nothing you can do for mono anyway. I was on antibiotics at the time (I kept acute sinus infections and running a mono test was just a fluke) and with abx and mono, you get a full-body rash. They pulled me from the abx temporarily so I could be more comfortable.