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Hi, I'm usually over at the PANS/PANDAS forum but DS17 does also have an underlying TS dx. Tics more or less controlled w/PANS treatment and 2 IViGs, but has remaining loud yelling tic (screaming one or two words, sometimes coprolalia). We are wearing earplugs. Do we just live with this, or is there something else to try?? He's already been on almost every psych. med, still on some, also on Functional Medicine regime for PANS with enough supplemnts to choke a horse. Has CBT therapist. -Has not tried L-carnitine or taurine, which I saw mentioned in past threads -CBD oil 25mg./2x day works so-so -Considering deep brain stimulation or tDCS is we can find a place Thanks! ~TJ (DS17: dev. disabled, PANS, ADHD, OCD, Anxiety; 2 IvIGs, one psych. hospitalization)
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Hi, I posted in the Tourette Forum but haven't heard anything. DS17 has PANS and an underlying TS dx (we think). Tics more or less controlled w/PANS treatment and 2 IViGs, but has remaining loud yelling tic (screaming one or two words, sometimes coprolalia). We are wearing earplugs. Do we just live with this, or is there something else to try?? He's already been on almost every psych. med, still on some, also on Functional Medicine regime for PANS with enough supplemnts to choke a horse. Has CBT therapist. -Has not tried L-carnitine or taurine, which I saw mentioned in past threads - PANS NP just said it'd be too much glutathione with these -CBD oil 25mg./2x day works so-so -Considering deep brain stimulation or tDCS is we can find a place Thanks! ~TJ ds17 (b. 1999): ID, DD, TS, ADHD, OCD, Anxiety; PANS diagnosis March 2014 and treatment started, about five years late. dd22 (b. 1995): neurotypical, IBS, Celiac mom (me): Post-babesia
