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Hi all, I have very high titers of coxsackie a/b, mycoplasma p, EBV, HHV-6, and was rx'd Valtrex by Dr T. I started it last week for a few days (took half dose for 2 days, then full dose for 1 or 2 days?) and then stopped due to what I thought might be side effects. In general I was noticing an increase in anxiety and emotional lability. It's certainly possible this was coincidental and not related to Valtrex - I don't know. I really want to give it a try though and see if it helps me - Dr T wants me to too (we're hoping by reducing titers my anxiety/OCD sx will improve). Anyone out there with good, bad, or indifferent experiences?? How long did you take it and when did you notice improvement? Thank you all so much...
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My neuro/pandas doctor put me on valtrex for a few months but I started getting horrific side effects rather abruptly: nausea, puking, inability to eat or drink, diarrhea, extreme headaches, much worse fatigue, etc. Basically all the less severe side effects. This was a month ago, I called and they simply said to discontinue it and they'd "send labs" to check titers. I haven't received any labs and neither my calls nor emails have been returned. Lately I can't sleep, it's been 2 nights now without sleep and my brain feels like it's rotting. My ocd is much worse than it's ever been, I feel like I have no control at all over my mind. My bladder is really really bad and in urgent pain all the time. I still have a feeling of being "sick" more so than usual and differently than usual. Something is off but I have no idea what to do. I just received disability but no insurance so I don't have a PCP at the moment and no local doctor to help. I went to urgent care and they just gave me something for nausea. I feel as though I need a "new" pandas/pans doctor but I am much too ill to travel, my mother and I have to move and don't have the money. Any tips would be greatly appreciated in reference to any of the problems listed above. Lastly, I read Dr. najjar's article on auto-immunity + neuro-inflammation = psychiatric illness and I think it all definitely applies to me; in the past 10 years of being ill we've never been able to explore auto-immunity or approach any of that type of treatment. - Ophelia
