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Hi, I'm new to this forum and to PANDAS, with a recently diagnosed 16 yr old daughter (misdiagnosed for 8 years). I live in Orlando and am looking for other families in Central Florida or thereabouts. We are seeing Dr. Murphy in St. Petersburg. Also looking for any experience, strength, and hope from those with teens. Thanks in advance!
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Our doctor has put my son on a gluten-free diet as part of the Shoemaker protocol for treating mold toxicity. Five weeks in, I've come to realize that he's not sticking to the diet whenever he's out with friends. Every time I catch him, he promises he'll stick to it moving forward, but its not happening. I've given him good food that he likes, including spending a lot on sushi for lunch occasionally, going to the GF bakery for sandwiches, but this hasn't been enough. He's a kid who definitely has food addictions (sugar/carbs) and who resists change or doing anything uncomfortable unless he understands WHY he has to do it, but so far I haven't found much to help me explain it to him in a way he can understand. He's 15, but probably has the maturity of a 13-year-old. Has anyone been through this and know of some good online resources and/or books, articles that might help us? I think even a picture book explaining what gluten can do to the body would be helpful. Any help would be appreciated - I'm stuck between the doctor who says we "have to" and the teen who won't!