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Found 6 results

  1. Does anyone have any insight or experience with a strep-positive PANDAS kid getting frequent nose bleeds? It only happens at night while she's asleep. I have her using a nasal spray and a humidifier, but so far I can't tell if those two things are helping. Her neurologist has no advice except t...
  2. Really hoping someone has some advice. My son (7) is in a flare and he's been waking up two hours or more each night- plus additional waking. Last night he was up for four hours. I'm a single mom and so this all falls on me. I can't function at work or at home. Feeling desperate. Sleep has alw...
  3. My son is 5 yrs old and 50 lbs and we've been unable to find any prescription that effectively allows him to fall asleep and/or sleep through the night. His anxiety seems to spike as bedtime approaches. We've tried ambien, doxepin, melatonin, clonazepam, clonidine, etc, but we've been wildly unsucc...
  4. Great eight-minute video of Dr. Stephanie Seneff of MIT discussing the connections between autism, vaccines, GMO's, pestisides, glutamate, sleep disorders, Tylenol, brain swelling, blood/brain barrier, etc. Very relevant to PANDAS/PANS as well. https://www.youtube.com/watch?v=o3P6wVUH0pc&feature=yo...
  5. Our dd age 5 1/2 is two weeks post ivig. We have not been one of the people who saw an immediate improvement. In fact, we saw a big flare in PANS symptoms about 2-3 days post ivig. I'm glad that we we had heard from other parents ( not doctors) that this could happen. Based on how bad the flare was,...
  6. The Sunday NY Times had an article on cases where there is a misdiagnosis of ADHD when the underlying problem is a sleep disorder. Article here. Letters to the editor in response are here.
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