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Showing results for tags 'mthfr'.
Found 9 results
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My son has PANDAS and Aspergers. He’ll be turning 21 at the end of Nov and no longer eligible to continue seeing his Dev Ped or the Bio Med Dr who treats his PANDAS. He was treated for Lyme Bart last year and is also MTHFR pos. I’m desperately seeking a new physician for him that “gets it”, in the N... -
Hi I'm new here and have spent the past few weeks immersing myself in the wealth of knowledge you have all made available here. It's been incredibly helpful as I try to learn everything I can about PANS. So first I just want to say thank you. My question is, are most PANS kids compound heterozy...
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Why folic acid supplementation/food fortification (energy bars, cereal etc.) can be problematic if we have MTHFR deletions. /www.youtube.com/watch?v=cWFPRI6X7P4&inf_contact_key=30aab23c6df2132c1a540c189895646f33499b9de8e26120377f0d2028093332 DD has an MTHFR deletion, and I was supplemented with hi...
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Hello, my 8 year old son, mild/controlled pandas for 4 years, on August 6th had 3 pins (like nails) were yanked out of his healing humerus (had broken upper arm bone 3 weeks prior from monkey bars fall) by ped orthopedic surgeon. He was sedated with nitrous oxide and versed. He takes prophylactic a...
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FASCINATING case study about a 16 yr. old boy presenting with neuropsych symptoms (severe, with hallucinations) All resolved with H. Pylori treatment and B12 injections. For those of you (like us) with the MTHFR C6677T snp, he had it also, and the psychiatrist noted that that mutation may have...
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My dd12 is doing great so I wanted to give a positive update to you guys. After starting to see a lyme doc in DC in May and getting her on a good protocol and getting her MTHFR diagnosed, she has changed dramatically at long last! Brief history..... first strep age 11 months old chronic...
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So dd11 has been diagnosed with 2 mutations of MTHFR through her new LLMD. I don't have the lab work in my hand yet so I don't know what the mutations are. LLMD is putting her on the methylated supplement for it. dd10 and I need to be tested now. Has anyone found that your regular doctors will r...
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Just found out my dd10 has positive factor 5 mutation. I think this may be one that comes in one and/or two copies but I don't know the specifics of her result. Her neurologist wants us to see a hemotologist soon. If anyone has experience with this, can you let me know your experience and what...
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So some of you may remember that my PANS daughter is compound hetero for 1298 and 677. My husband has one 1298 mutation. My other daughter has one 677 mutation. Of course, being the mom I was more concerned with everyone else and didn't even think to get myself checked! Well I was tested recentl...