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DS15 has had GI pain and GERD since December 2012. Ironically the symptoms started when we were in Florida for the OCD program at Rothman. So we were there to fix one problem and came home with another. Since December the following tests have been done: Metametrix Stool Analysis - only showed low Elastase (pancreatic enzyme) so he's taking digestive enzymes now H. Pylori blood test negative C Diff blood test negative C Diff Stool negative H Pylori stool negative Colonoscopy/Endoscopy showed a hiatal hernia but nothing else remarkable (and biopsies were negative for H Pylori) Abdominal CT scan negative He's taking Dexilant (proton pump inhibitor) that is sort of helping with the GERD, but I learned this can eat up B12 so this is not a long-term solution. I know you are all thinking OCD restrictive eating, but this is not the case. He simply has abdominal pain when he eats and does any form of physical activity like climbing stairs. He has lost 10 lbs. since February. He is 6'2" and weighs 126 lbs. He is IGM positive for Mycoplasma, has elevated strep titers and positive for WA-1 Babesia. He has a Hickman line for IV abx, but we stopped all abx and antifungals 3 weeks ago to see if they were causing the GI distress. Without resorting to an NG tube, how do I get calories in him? We have been strictly gluten and dairy free for 4 years.
