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Has anyone ever seen a sibling of their PANDAS/PANS child seem like they were starting to exhibit symptoms and then they resolved themselves? My daughter every now and then I swear I see something, and then a few days it's gone. I mean it disappears without any intervention. Her clothes will bother her (slight sensory issues since birth) or she will just sort of be off. Like she's npt 100% there and then a couple days later she's just back to her normal self. We are day 10 of chicken pox and she is off (as I have posted elsewhere). We took her for a strep test. Negative. My pediatrician who has always been great with my PANDAS son likened it to possible kickback of the virus. His analogy was it was like she's been underwater and her body has to catch its breath. Or like damage is being repaired and to try and see if it resolves itself. She is annoyed that her bed isn't made correctly, but that's something that isn't new to us. She has always liked a neat bed (as I remake mine every night because I also have a thing about sheets). But she's not angry it's not made yet. I told her I would help her when I was done doing a few things and she said ok. In your opinion could this be some quirk of hers that could be just a little exacerbated due to inflammation? I told my husband that if I see it not going away or increasing that I will call and get abx. I mean I know my kid best, but I also really love and trust my pediatrician. He has been great with my 9 year old who exhibited overnight TICS, anxiety, and OCD in 2008. He is doing great. Only has a mild tic from time to time. Thanks for your time. -
Hi there, I have been here before with my 9 year old son who is PANS and doing tremendously. I am back to discuss my 5.5 year old daughter who is currently on day 5 of the chicken pox. She has had no Varicella booster. As my son did not either. My son came down with it and had a very mild case. Two weeks later my daughter broke out in the rash but hers was more severe. A little background to her...strong willed, tantrums, some sensory processing but nothing that we’ve had to seek treatment for. Obviously my fear is that this Illness is going to be the trigger for her onset and we are going to go down this path once again. Did anyone’s kids have the chicken pox and have that be their initial trigger? If so when did you start seeing behavior. I know with this condition you tend to be hyper aware of everything your child does. I just feel like I am seeing a difference in her. Just little things. Baby talk. Very animated conversations where we’re not really talking about anything. Just seems like someone else is driving. I can feel it. Any input would be greatly appreciated. UPDATE: well we are on day 9 of the CP (she is healing very well) and today we made “the call” to the pediatrician. My daughter has always had some sensory issues and quirks about her blankets being straight....minor things. And to be honest I have seen some of PANDAS like behavior in the past. Her talking in a different voice. Conversations where I can’t connect. Those would wax and wane but never for more than a day or two. The last few days were seeing an increase in these and other odd behaviors. So I am bracing myself to go down this road again. Part of me feels like maybe she’s always had this and now it’s just flaring and it will calm down...or we’re at the beginning of what will be a whole other ride. I don’t really know what I’m asking...I just know that I’m terrified and any input from anyone would be helpful. I hate this disease. I hate that my kids have to struggle through this. I hate not being able to look at my child and question every head turn or blink or behavior. So yeah. Im spinning.