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Things were really bad this past week. My ds6's OCD was just through the roof. I was in tears this morning and can't bear to think that he's only 6 and things may get worse as he gets older. I am desperate to find a doctor who follows the Yasko protocol who is willing to skype with me and just do long distance consultation in general. I feel I have exhausted my nearby resources here near Toronto, Ontario. A DAN doctor that I was working with (I probably am not allowed to mention her name) REALLY didn't work out for us. However, she did get us onto the 23andme site and I do have the results. It seems clear that my son has CBS problems, and has the compound heterozygous MTHFR mutation, as well as COMT issues. I know we need to prioritize CBS first, and from my readings, the first thing to do is to lower his sulfur content. This means staying away from sulfurous foods, and any supplements containing sulfur (glutathione, NAC, methionine, taurine, and cysteine), as well as Epsom Salt baths. I could go on, and on, but I've read some posts from Sunshine about her child having CBS problems, and having a long-distance doctor that she consulted with who followed the Yasko protocol. What I really liked about the posts that I read, is that she (Sunshine) was able to "track" the progress of her child by the use of tests to keep the guessing game out. I don't know exactly what that would entail - my guess is urine sticks to track heavy metal excretion, and/or bloodwork to track a reduction on homocysteine levels.... But the point is it empowers parents to SEE what is happening and that's totally what I'm looking for. Does anyone happen to know that name of Sunshine's doctor, or know of another Yasko doctor that can help us? (Also, I know that some people would rather keep their amazing doctors private so that they don't become inundated and start providing less than adequate service to existing clients - I feel this has happened with the doctor we were dealing with nearby - so please feel free to message me on this board. Or, I can give you my email address if you would like.) Thank you. I'm not a religious person but lately I have been praying a lot.
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Like many here I am interested in increasing the good bacteria in my child's gut through the use of fermented foods, which is supposedly more effective than probiotics. However, I have read in Yasko's "Autism: Pathways to Recovery" that fermentation results in increased glutamate in the body (fermentation results in protein break-down and any protein break-down creates glutamate). Excess glutamate is a big deal in her opinion and can have significant neurological effects when the gaba/glutamate balance is thrown off. Just wondering if the benefits of fermented foods outweigh this potential glutamate issue and if anyone here has had success with introducing fermented foods into their or their children's diet?