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TeamTyrion

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  1. Hi there! I haven't commented in this forum in years? But I read your post and wanted to comment. I'm so glad you have found a supportive GP - that is quite rare as you probably already know. As far as your explanation for the inflammatory procress, I *think* it's correct. It's been a while since I read the science behind the inflammation but what you wrote rings all the bells. A couple of things I wanted to recommend. I feel strongly about the use of some sort of nasal spray to combat the infections that trigger the TH-17 responses in the nasal passages (and ultimately lead to inflammation via BBB). The product we have used, with great results, is XLEAR. I pick it up at the local health store. It acts as a "natural antibiotic" for the nasal passages. It contains, Xylitol, saline and Grapefruit Seed Extract. We have found it invaluable in our home for both preventative measures and treatment. Also, have you considered getting your tonsils and adenoids removed? Good luck! And hope you continue to find answers :)
  2. Hi Bigal, Thank you for the post. How are things going if you don't mind me asking? My son has been wearing a mouthpiece for 1.5 years now. Can you tell me how long your son wore his mouthpiece before he no longer needed to? Thanks.
  3. Dairy Carrie's claim that they are in fact, a supplier to Lifeway is what makes the argument a compelling one. So, she says they supply to Lifeway. Lifeway says they do not. He said/she said? I just wonder why such a claim (on Dairy Carrie's) part would even exist? What benefit could she possibly have? The benefit to Lifeway denying it is certainly clear.
  4. I was thinking about adding a soil-based probiotic to our probiotic rotation, however, not so sure now after reading this article. http://www.kitchenstewardship.com/2012/06/21/are-your-supplements-turning-into-deadly-pathogens-in-the-gut/ It seems that it is great if you generally have a good gut environment; but potentially dangerous if you have gut dysbiosis. And, my Son definitely has that! Does anyone else have this concern, or testimonials to its effectiveness/non-effectiveness? I think many of us, or our children, may have some form of gut dysbiosis on this board so just wondering.
  5. Just found this on a post by Mommypotamus: http://dairycarrie.com/2014/10/06/lifewaykefir/
  6. Undigested food in stool is a clear indication of leaky gut.
  7. I've heard that Olive Leaf Extract is good for the immune system and can help with viruses (not sure how though). I had to read up on the benefits of Oil of Oregano and so far I see that it is good for parasites and bacteria - can be a replacement for antibiotics. Hmmm, does this mean that I shouldn't take oil of oregano AND antibiotics?
  8. Getting vaccinated is a personal choice and it needs to be based on what you think is best for your own child; obviously a parent is going to prioritize her/his own child above the potential future welfare of other people. I'm sure Thundersweet chose to include that information about vaccinations in order to get informed responses, not to be judged. Thundersweet, we use Ultimate Flora (50 billion) but a word of caution: start slowly! Sprinkle just a bit in his drink/smoothie and then add a bit more everyday. Look for rashes on the body, which may be a good thing (herxing from bad bacteria die-off). Try giving epsom salt baths to help with detox too. Another word of caution: start with small amount of epsom salt and work up. Some kids have a sulfur intolerance and epsom salt baths are really magnesium sulfate (hence contain sulfur). Consider also oral magnesium (citrate form is probably the best) - check chemar's signature for "treatments that have helped my son" and you will see all the recommendations.
  9. I would try to avoid sedation as much as possible. A lot of people with methylation problems (many here suffer from) don't do well with the epinephrine that is often used with the gas. Also, there have been issues with nitrous oxide (laughing gas) too, although my understanding is that nitrous oxide isn't often used anymore. You may want to ask what specifically is used. Nitrous oxide and methylation: http://www.psychologytoday.com/blog/health-matters/201209/laughing-gas-nitrous-oxide-is-no-laughing-matter
  10. Amazingly, our ENT surgeon here in Ontario has been receptive to our discussion of pandas with relation to our Son's upcoming tonsil and adenoid surgery. She is going to prescribe abx following the surgery and when I asked if she could culture the tonsils she said "Sure, but please provide me with a list of what to check." So, I need a list!! His surgery is this upcoming Tuesday and here's what I have so far: Streptococcus - Group A Beta-hemolytic Borrelia burgdorferi Bartonella henselae Bartonella quintana Babesia microti Babesia duncani Mycoplasma pneumonia Mycoplasma fermentans Ehrlichia chaffeensis Coxiella burnetii If viruses can be cultured: Coxsackie A HHV-6 Any other suggestions would be appreciated. Hopefully this will provide some relief to his OCD.
  11. So, everything is fine. The pain eventually subsided and there was no sign of infection. The doctor said it was likely a lot of gas from the abx. Good to know about the lymph nodes though rowingmom, that may also be a possibility. missmom - he said he didn't feel any pain during or after urination. It was just a constant, intense pain that lasted for about 2 hours.
  12. We started abx on Sat. and have been doing probiotics every night since and started Sacc. B last night. My Son is writhing in pain right now - can't even walk properly. Yelling with pain - says it is above penis area (in groin?). We are on way to hospital...does anyone know what this may be? thanks
  13. I don't know. I guess the question is, once a gene starts expressing, can it ever stop expressing? Hmm, perhaps LLM can chime in on that one.
  14. I have not had any luck with the probiotics either. Yesterday I got a new one: Ultimate Flora by Renew Life. I was told that the "key" was to go really slow - first just a sprinkle of the capsule for a couple of days, see how it goes, then add a bit more, check how it goes...if ok, then add more, etc. So, we'll see. I'll report back if a success or not.
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