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  1. For those of you interested in the gcmaf, here is a copy of the letter I sent to www.gcmaf.eu for an update on my son's treatment. It is a requirement for treatment which adds to their studies. It is my belief that the healing will continue even when we are done with the treatment as it is supposed to last your lifetime [not sure if that is true for all diagnosis]: My son (15 yrs.) started on gcmaf over 6 months ago now. He had already been through 3 years of treatment prior to starting gcmaf and is still taking some supplements (detox, fish oil, thyroid meds, desmopressin, recently minocycine as well). My first goal for trying gcmaf was to reduce high viral numbers (that had not gone down over 3 yrs. of prescriptions/supplements/homeopathic tinctures). Valcyte was the last prescription tried in which he had 6 weeks of 'feeling better' for the first time in 3 years and then went back to 'before' baseline (flu-like sypmtoms). This was two summers ago. My second goal for gcmaf was to train his immune system to work better (i.e., PANS). He has been treated for several things which indicate that his immune system was not working well. He felt ill just being around others that were ill. His nagalese was 1.3 at the beginning of gcmaf treatment-it is now .87. He will be finishing his second vial and then stopping in a few months. He has been on .05 mL 2xweek for the entire treatment. His CD57 was 48 at the beginning of gcmaf-it is now 70. Took 3 yrs. with treatment for it to go from 24-48 before gcmaf. His viral numbers have been mixed. EBV and HHV-6 have been the two that have been testing HIGH for 3 years. His last blood work showed the following: EBV 4.0---Past: 3.6; 3.0 so not very impressed with this yet. HHV-6 2.89--Past: 4.34; 3.64 so this has shown improvement. Lymphs 45--Past: only one was below this at 41.1 (over a year ago), but the rest have all been 46-55. Not sure if this is significant but will take it. Not seeing much with the immune system yet. He is in the middle of a cough which has always triggered his PANS which it has this time as well (per ART muscle testing and some symptoms). Before this cough, he has felt better lately, than in the last three years (except for end of Valcyte two summers ago for 6 weeks). It has lasted over 3 months now. For the first time since my son got sick and never got better, he is referring to 'when he was sick' in the past tense, starting to exercise, and play soccer again. We are hoping for continued healing.
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