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Just got a callback from DS20's new cardiologist. He was born with a congenital functional bicuspid aortic valve, that we found out about 5 years ago, when he was having a R/O for Marfan's Syndrome (didn't have that.) At the time, and up until his last appointment at 18, he had a mild leak, and just needed to keep an eye on it. He went in this week, and the doctor called back last night, and said the leak is now moderate to severe, and he has to go in for a stress test, so they can determine just how bad it is, and if he is going to need surgery! I am very worried, because DH already had a mitral valve replaced 2 years ago, and now is on coumadin...dr. tried to repair it, but couldn't. DS has chronic lyme, viruses, and lots of stomach issues, plus has Asperger's (although IVIG helped increase his social skills by 7 years overnight, so I suspect the Asperger's was probably PANS all along.) Being a college student, he had an AWFUL diet for the past 2 years, getting even worse when he actually went away to college this past year. To all my incredibly intelligent and wonderful online friends, does this sound like anything lyme-like or otherwise that could make the leak worse in just 2 years, or could it have been the diet, or something else? I know if I ask the cardiologist, he won't have a clue (I've learned that traditional drs. just don't get it, and I also know that symptoms we've seen in the past with my other DS, such as enlarged spleen, low WBC, etc. turned out to be babesia....which you guys suggested to me.) Thank you
