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  1. Just had ds's weekly appt. for Neurofeedback at MD's. During our short discussion, I mentioned that someone on this forum had found strep in their child's mouth (thank you!). It was her that discovered it! Such a small world. She said that she has a couple of patients that have been like my son, PANDA symptoms seem to linger and not go away completely. My son had strep show up positive for the first time ever, 3 months ago in her office. She treated him with Abx but some "brain" symptoms have lingered. Now today, we have this conversation, so she tests his mouth. He is positive for Strep! She tested mine and it is negative. His father just started using the mouthwash (prescription) a week ago for mouth surgery tomorrow. Son says he has started feeling a little better in the last week...seeing a pattern here. Dr. prescribed the mouthwash (Chlorhexidine Gluconate) for 4 weeks for son. Xylitol gum was recommended as well. Asked that dh continue to take his for another 3 weeks. Will be so interesting to see the results. Dr. is thinking that maybe strep in the core cause of son's PANDAS and that strep may just be hiding in unusual places in those that are testing negative in the throat. This, after I have been saying, for 4 years, that strep is not his trigger!!! Wow! :-)
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