Darlene

Hello, My daughter is 13 and has had over 11 cases of scarlet fever since she was little. She has been to the disease specialist and neurologist with no help. They just wanted to put her on Strattera and that was it. I took on the mission to help her myself. The strep has not returned in over two years and her tics have subsided tremendously as have the other symptoms associated with PANDAS. I have been working with a family friend who is a nutritionist and that has helped immesely. I believe she has PANDAS but the doctors don't know what I am talking about and are easy to dismiss it. My concern right now is ADD. She still has poor focus and concentration at school. Her organization skills are really bad and it's causing a lot of frustration. She's in 7th grade and my main fear is that it's going to get worse. She is a very bright girl and does well on things that she's interested in but her overall school test scores are below average. I have been trying to educate myself with books and sites like this one to try to find some answers Do you have any suggestions? Your information is very much appreciated. Thank you for your time. Darlene