hugs2day

My son always presents with severe gastro pain, constipation, right before the crying, ocd and aniexty begins, it is a common theme with him. It started after he had his tonils taken out because of chronic strep, he couldn't eat or breathe anymore so ENT said he should be done with strep after tonsils were taken out, but that is when PANDAS hit full force. My son does get chorea movements with pandas episodes so I am very interested in researching mesenteri adentis. Thank you for sharing that information. His dr. started him on 21 day taper today his first ever. The hope is it will bring down the assault before it gets going any worse. I have read on other forums that strep can get into the gut and other parts of the body. Not sure, what to think of that, but makes sense because after my sons tonsils were taken out and he had PANDAS severe he got a swollen lymph node behind his right ear yet no red throat or sore throat. The lymph node goes down when he is well and swells up when he is sick, like today. Titers were normal and always are even when he had strep present. His Xrays always show stool packed in colon, but he seems to be in gastric distress when PAnDAS hits. Its a common theme with him. I increased his Azithro today to a higher dose and started steroids and been giving mag citrate and he is already looking better. I pray it lasts.

Hello, I am new to the forum, I have a 6 year old with PANDAS. He was diagnosed last November after a complete personality change and he became homebound due to fear and anxiety and bizarre behaviors literally overnight. Azithromycin brought him back to us, but now in the 3rd week of school he is slipping away again. The interesting thing is his gut is what is attacked, he gets completely constipated and a distended belly and nothing gets his bowels moving and his urine smells like ammonia. We are giving him food enzymes and mag citrate regularly and his bowels wont move. He had his tonsils removed a year ago due to chronic strep and that is when PANDAS hit the gut. His throat no longer gets red its his gastrointestinal tract. Titers are normal. Is there any research that shows strep attacks the gut. He is still on daily Azithro and his probiotic is custom p. without strep strain alternated with Therabiotic complete without strep strain. DAN wants to try steroids for the first time I am worried it will make gut problems worse therefore PAnDAS gets worse. Should I ask for something like a second antibiotic instead. Any advice you can offer would be really appreciated. This forum is such a valuable resource to me. Thank you for sharing.