My almost 6 year old DS regressed into autism at 18 mos. I was a "warrior mom" and we fought hard. On August 22 he started Kindergarten with no support and no one knows of his diagnosis.
On Saturday he stopped letting us kiss and touch him. If we did or he accidentally touched us he "wiped" it with his hand and then wiped his hands on the wall. He stopped sleeping on his pillow and would not lay where the pillow had been. He will not let me out of his sight if we are in the house. His handwriting reverted back to when he was still reversing letters and writing slanting down the page. When he wakes up his hands pop up to mid-line and move as if he is playing a piano. He is having meltdowns, overreacting to small things, screaming and crying often. I googled "Sudden Onset OCD" and knew immediately that he probably had PANDAS/PITAND. His pediatrician (amazingly!) thinks so too. She did a rapid strep that was negative and ordered 12 other tests. Unfortunately she would not give me ABX until after she gets back results.
My husband and I are devastated. I know I have to gear myself up for another big fight but autism has drained me. Over this week I have been reading this forum, and reading everything I can on the web. I know I am not absorbing most of it at this point. I am trying to do just a little each day. because I am feeling paralyzed and I can't let that happen. DS had strep in late July followed by Fifth's disease in mid August. I know I will need a PANDAS doc. I live in FL, near Dr. Tanya Murphy so hopefully she sees patients at this point.
I am very thankful I found this forum. I still have so much to read and learn but it really helps knowing you guys are out there!!!
