Baylor

My son has an allergic reaction to Penicillin after the last Strep bout. I am wondering if the other antibiotic options work as well? And what they are. My head is in a tizzy trying to take the right first steps. I don't want to make it worse by doing the wrong thing. Thanks for this place. Reading is helping so much.

Sounds good! All I can tell you as someone who has not even been seen yet is that after emailing Dr T it was the first thing he told me to do. Motrin for his age and size for 3-5 days. My son had his first dose at 4:30 today. He was not with me though. My husband said he seemed better when he was out with him. I am going to start keeping a record.. Writing things down.

It probably was a psychiatrist. It freaked me out because my first thought was I was worried about my child being medicated. That would be great if we could get reimbursed. Can I ask what meds and labs tend to cost? Money is really tight for us now and I want to make sure I have what I need even if it means borrowing it.. The Dr I spoke to was Dr T.

I am sorry you are here also but you gave me some encouragement. I emailed DR T office today and he is willing to do a phone consult and then see us next week. I was apprehensive just going to a new dr but it sounds like this is THE dr To see. Keep us updated on your progress.

Thanks for all the information. I have to tell you that after I came home from vacation I was overwhelmed and thought.. Maybe I am just imagining it.. I am not. It is worse. His teacher called me to tell me that the kids were telling him to "knock it off" because he kept shutting his jaw tight over and over making that click noise. He started in June with throat clearing and went to a weird gurgle noise and now to this forceful clicking. He is also having behavior issues and outbursts. Trouble focusing... I feel like a failure. I just did not want to believe it.. Today, I made an appt with his ped, Though I am not expecting much, I am going to ask him for a strep test and then the blood test.. But I don't know the exact name.. TITER is all I can find.. But I am not sure what they are testing for exactly. I contacted CHOP near me as there was the name of a Dr on a list there.. I also contacted another DR and he emailed me right away and told me to start Motrin. That some kids see improvement immediately with that and while it is not a cure, It will help him. That the cause still needs to be found. My problem is that he does not take any insurance but one. He said he would see me and charge me monthly payments but then will my insurance cover the meds? or tests? Money is tight now and I know money is no object when it comes to a childs health, But I am not sure if I should go that route or if I should stick with the local PANDAS specialist. And what kind of Drs usually treat this? The one in Phila is a Psychologist and that makes me nervous. I don't want my son just put on meds of all sorts.. I am worried about making a wrong decision and making it worse! Is that possible?

Thanks for the information.. I will read it.. We came home early from the shore (due to Hurricane on the way)and I am going to call Ped tomorrow and see if he can get tested for strep again and explain the issues.. He has been healthy other than the strep. Everyone in the family is pretty good. DH has MS and I just got over a bout of vertigo but other than that.. everyone is good. No fevers, no colds.. Nothing.. I love my ped and I hope he is on board with all this. He knows My son well and should be able to see the tics and differences himself. What I need to know is ... Is this recoverable? Is there something that will stop this and reverse it? Or is this something he will deal with forever?

Thank you so much for your replies. We are on Vacation right now and I am just trying to figure out what is normal, tired, over active vacation behavior and what is different. Part of me so bad wants to just ignore this and say it is nothing but something is just tugging at me... I have to at least get a good evaluation by a PANDAS specialist. I need to know for sure. I just want to say that having people who get the feelings and have been there, makes me feel much less alone. I will pm and will be back here to figure out best course of action when we get home this weekend. I got Dr E name from another post here and just looked her up to see who she was. I am curious what kind of Dr treats Pandas? Infectious disease? Psychologist? Neurologist?> What I am burdened with today and prognosis? What is the outcome for kids with PANDAS? My entire brain is just so full or mixed thoughts... My mama bear instinct mixed with sadness.. Sorry, I know I am rambling but I don't want to get into it too far with Dh until I know more. Thank you again..

My son who is now 7 had recurring strep through the winter... 3 times. First 2 times treated with Amoxicillin and then the last time he had an allergic reaction and was treated with something with a c.. Not ceclor but it was a liquid oral and smelled and tasted like garbage. After ward the dr did another swab to see if it was resolved but I never heard back and figured it was gone and solved.. So that was about 3 months ago.. Fast forward to recently when I am noticing ticks and outbursts that are not characteristic for him. He has had little things but I chalked it up to maybe some OCD because he dad has that.. With some ticks... But this is different. Last night while we were at the beach He started clicking his jaw tight.. opening and shutting it pushing it forward.. Then he had a melt down because his ice cream dripped.. Not like he normally would. He melted down.. When it was all over, He said to me.. " Why did I scream at you like that and cry?" And I almost fell apart. It took all I had to keep it together.. The last time he had strep and we ended up in the ER because of the allergic reaction to Amoxicillin, I asked the Ped ER doc and she told me that most Peds don't think it even exists and not to worry. I realized I was not going to get an information from her but it did not make me not be concerned.. I am in suburbs of Philadelphia and read in another thread while I was waiting to be registered completely about dr Elia at CHOP. I am not sure the reaction I am going to get from his Ped. He is pretty good about my concerns and thoughts but I have brought this up before and he kind of side stepped it. I am calling when I get home from vacation to have an appointment with him and see what he says. Any advice, information, proactive steps, dietary suggestions greatly appreciated.. From what I have read the earlier something is done the better. I am really trying to hold it together as I am not sure what this means in totality. It feels completely overwhelming this morning.. He is a bright sensitive child who is my heart... Thank you. and Thanks to whoever started this board.. There is a little comfort knowing there is this resource and people who understand.