Ashley B

Thank you for the responses! I started her on B-Complex 25, but it doesn't seem to be helping much. I used to give her B-Complex 50 mg, but with her multi vit already giving her 100% of her daily value, I didn't want to give her TOO much. Do you think I should up her B Vits back to 50mgs a day? As for the magnesium, at one point I was giving her 450mgs a day, but then read that that was way too much for her age/size. So right now she gets a total of 250mgs of mag taurate a day. Should I up it to 375? Is that a safe dosage for 7 years old, 55lbs? Also, Chemar - I know your son had great success with L-Carnitine for his vocal tics. Have you heard of many people having success with their motor tics as well? She has this very pronounced facial grimace w/ head turn going on right now. I really appreciate all of your help! Thanks again!

What vitamins/supplements do you think are the best for motor tics? My DD7's tics are very prominent and heartbreaking right now. Her motor tics are MUCH worse than her vocal tics. We have tried several different vitamins over the past 2.5 years and at one point had her on several at once, but right now I am starting her back at square one. The only vitamins she is currently taking are 1) multivitamin 2) krill oil 3) magnesium taurate (125mg 2x a day) 4)probiotics (for tummy issues) 5) inositol. What would you recommend looking into trying next? I have heard good things about L-carnitine, but usually it's in reference to vocal tics. Does it help with motor tics? What about grape seed extract? I know Bonnie has it in her supplements, but is it helpful with tics or is it just an immune system booster? I should also mention that we have her on a very healthy diet and no dairy. Any thoughts on the next step? Thank you in advance for your help! Hopefully we can find a vitamin regimen that works!!

Hello! My daughter will be 7 years old next month and has horrible seasonal allergies (unfortunately she got them from me!) Last spring the allergy specialist prescribed her Flonase for her rhinitis and told us to give her OTC allergy pills for her watery, itchy eyes. I am pretty sure they made her tics even worse, but it's hard to tell since the allergies themselves seemed to exacerbate her tics too. How do you treat your child's seasonal allergies? Do you use allergy meds or something more natural? I gave her some quercitin last summer but then got cold feet after doing some research that it might not be safe for kids... Any insight would be greatly appreciated!!!

My daughter's tics are the worst I have ever seen them right now. They started waxing a few weeks ago and have yet to subside. Her neurologist suggested Intuniv (but it's $100 a month even after insurance!)so he wrote her a script for Tenex/Guanfacine (the short acting version of Intuniv). I haven't started her on it yet, but am wondering if Clonidine or Topomax would be a better medication to try. Are your kids having success with them? How old are they and what dosage are they taking? Meds has always been our "last resort" but after these past few weeks I am really starting to consider our option. Thanks in advance and best wishes for your children!

Thank you all for your replies! I ordered the Jarrow Inositol online the other day and it's scheduled to arrive today! (woohoo!) How much would you recommend for my daughter? She is 6.5 and about 50lbs. Thanks again!

Thank you so much for your reply, Chris! She is generally a WONDERFUL child! She is very well mannered, smart, fun and easy going. This OCD onset is very unlike her normal behavior. I would love to try some inositol. I see you use a liquid form - can I ask what brand you use? It's definitely worth a shot! And thank goodness at this point her OCD (just like her tics) seem to wax and wane so it's not an every day battle! Again, thank you very much for your response!

My DD6's OCD is really starting to come out. She HAS to have the refrigerator door slammed, the car door HAS to be shut a certain way, her hair HAS to be just right, shoes/clothes HAVE to fit perfectly, etc. Today I was late getting out the door for work because she was so upset about her braid not being "just right" or "comfortable". She literally had a melt down, which is not typical behavior for her (she is not a whiny child). I was told by a friend with an OCD son that it is important not to cater to the child's OCD, and to purposely NOT fix the things that make them uncomfortable to get them out of their comfort zone and get past it. But it was so difficult this morning. She couldn't function because her hair wasn't right. Are there any supplements you would recommend? She already takes a good multivitamin, magnesium, taurine, krill oil, Vit C, Methyl-B, calcium (we are staying away from dairy) and Zyrtec for allergies. Any advice would be greatly appreciated. I am so grateful for this forum -- it's always brings me hope! Thank you! Ashley

Hello, Flu season is right around the corner and I was just wondering how many parents in this forum get their child the flu shot. I used to get my DD6 the flu shot every year, but after all that I have read about vaccines I am very hesitant. Any thoughts would be greatly appreciated! Thanks! Ashley

Hello! This is my first post so bare with me! Heres our story: We first noticed my DDs tics at age 4.5. It started with eye rolling and head turning and has manifested into various tics ever since. She has no history of strep, and we don't have any family history of TS. She is now 6.5 and is about to start 1st grade. I feel that we have tried everything: we saw a naturopath, did acupuncture, chiropractic care, had her allergy tested (strong seasonal allergies and a few food sensitivities caught by the Elisa Test), bough expensive HEPA filter air purifiers, etc etc. I have read every possible book and website on natural approaches to treating TS. We have eliminated the foods that she is sensitive to (including milk, wheat, gluten, peanuts, etc), she has been on several supplements for the past year, and yet her tics are still there. They arent SEVERE per se, but they are very noticeable (especially to me, and to her as well). Right now she has a weird ear-pulling tic, as well as neck stretching, arm stretching, wrist stretching and the wincing/frowning tic. She is a very bright little girl and is extremely outgoing and fun-loving. She is very social and is very talented. In Kindergarten her teacher pointed out that she has a hard time focusing and staying on track at times. She is not hyperactive at all so she would be better classified as ADD. She is a very smart little girl but she can easily fall behind in school due to her lack of concentration, so we have to work extra hard on schoolwork at home. She also has slight OCD (cant stand when I dont shut the car doors hard enough has to re-shut them herself) and some sensory-type issues. For example, she doesnt like the sound of my voice, especially if I use any inflection or excitement or silliness. It REALLY bothers her. Its very strange and its literally only with me. Here are the supplements that she is currently taking: - 1 Multivit - 1 chewable Vit C 500 mgs - 250 mgs magnesium taurate (sometimes up to 375 mgs) - 1 Calcium/mag/zinc supp - 1 krill oil supp (weve tried fish oil and flaxseed oil as well) - 1 prebiotic/probiotic combo supplement - 1 Quercitin 500mgs - B-Complex 50 - Methyl-B lozenge - Dr. Weils antioxidant supps I did purchase NAC and ginko, but I am hesitant to give her anymore supplements at this point. My poor child, she is SO sick of vitamins!!! I have heard that people have had great success with Bonnie Grimaldis supplements. However, I already give my DD a lot of the supplements that she puts in hers-- so do you think it would even be worthwhile switching to her program? I have taken DD to the neurologist a few times and he has recommended Intuniv for her. But since its over $100 per month even with our insurance, he then recommended Tenex, 1mg 2x a day. I have heard great things and terrible things about these drugs and I dont want to go that route unless its absolutely necessary. Also, I have heard that these drugs tend wear off after a few years and you have to keep increasing the dosage. I would hate to start her on them now while her tics are mild/moderate and by the time shes 12 and if she REALLY needs meds, she will have to take a super high dose. I just feel that we are at a complete loss. I feel like we have tried it all and she is still ticking. And the fact that she is only 6 years old, doesnt make me too optimistic that her tics are going to be getting better anytime soon. If you have any thoughts, input, recommendations, ANYTHING, please let me know!!! Thanks in advance! Ashley