sebrown1126

We are now one-week post IVIG, and I totally put stock in the idea that some of our kids can have a huge herxheimer reaction post IVIG. We kept giving our son stronger pain meds and it didn't help. We changed to round-the-clock Benadryl, Alka-Seltzer, and Epsom Salt Baths, and the difference was amazing. He's still got a bit of a headache, but nothing like before. Better yet, we are now seeing the positive benefits of IVIG. Last night, he told us that all the "bad voices" in his head were completely gone. Other people (as well as our family) are noticing a big difference in his emotional state, and his ability to be calm. I LOVE IVIG!

p.s. Sorry, JUST found another thread from awhile back on a similar topic. Got some tips re: benadryl and charcoal from that.

Our son had IVIG Thursday and Friday of last week. After the second day of the infusion, he developed a very severe headache and vomiting that persisted for 12 hours. The headache remains. Nothing will touch it. He does not have neck pain, so we are choosing not to believe that it's aseptic meningitis. Anyone else's child have a headache that long and severe? What helped? I'm working on getting some stronger pain meds, right now, we're using Motrin 400mg and have just added Tylenol (although it's not good for him....he's formerly on the autism spectrum). We also started prednisone today but no relief yet. The great news is that we notice a difference in him with his PANDAS symptoms already! We just have to make some progress with the headache. Feedback/guidance welcome. Thanks, Sara