princess1

My daughter also takes a multi with 400mcg in it. She is taking 400 mcg in addition to the multi.It is in a seperate tablet.

My daughter weighs 90lbs but is taking 400mcg not 400 mg .We did not test for folic acid deficiency.I had read an article and thought to give it a try because of its positive effect on brain development.iI just asked the pharmacist for a daily dose and that was the 400 mcg.

The tics were actually the first to go.She was clearing her throat a million times a day and was embarrassed as well because it was distracting in class.Her tics disappeared with the folic acid.Her hand writing improved, her separation anxiety went, and anxiety.She has had strep again but only the anxiety returned for two days but not the tics. I hope it helps your son.Good luck

I hope it works.It has been the only thing that did help.We spent a lot of money on different solutions.This was the only miracle?God bless your daughter.

I have not been on the forum for a while but wanted to share the amazing improvements for my girl who is 10.She was diagnosed a year and half ago and went through severe pandas symptoms.Tics and anxiety was through the roof and we tried many things.Every new trial with different solutions took only the edge away but never was this child at peace.Finally one thing worked to eliminate the anxiety and tics and that was Folic acid.It took a month of daily use .400mcg once a day and all supplements stopped except multi vitamin.She has been anxiety free for 6 months with only 2 days relapse with a full blown strep infection.Five days of Zithromax and she had the anxiety for 2 of those days.This past 6months have been an amazing miracle and I wanted to share this with all of you.Remember to be patient.It took approx a month to begin to see a calm state occur.2 months after beginning she returned 100 percent to who she was prior to pandas.I hope this bring someone maybe a new solution to try.

Thanks for your response. I've read about the GAPS diet and just wondered if symptoms of anxiety got worse at the beginning of the diet.I understand that a die off period happens with the intestinal bacteria sending toxins through the body in high volume.Did your child experience any of this and how long did it last? My daughter is having some OCD symptoms that are worse than ever. Thanks so much Sue

Hi Just started my 9yr old dughter with the supplement NAC for Ocd (Pandas diagnosed Jan/11) and the SCD diet.Our doctor recommended both very strongly so its been only a week with anxiety diminishing every day.Anyone who has tried either Nac or diet would love to hear.What a hopeful day

My 9yr old daughter has that reaction when she is on abx .Its not the azithromycin it is the reaction to infection .She has Pandas does your daughter?

It is very likely that your son is aware that his compulsive behavior is different than his friends and tries to hide it. My daughter does this as well but will be more symptomatic with her family. They are more authentic with family because that is where they are safe. Just remember children watch to see what is socially acceptable and learn from watching others. My daughter at 9yrs old knows that her ocd behavior is not normal and will often cry because she suffers with self esteem because she feels different. Just remember children with Pandas want to fit in too and its just much harder for them.

My daughter 9 has Pandas.Yesterday the psychiatrist noticed that her reply to questions was slow. I have noticed that conversation going in takes effort to process and she has to think hard to give a reply to questions.Has anyone else had cognitive delays like this with Pandas? She avoids reading because her ability to grasp what she is reading is tiresome for her.She loved to read before her onset of Pandas.Its sad .

Hi My daughter is on Cefzil abx 500mg per day and her throat clearing stopped.When the doctor dropped the dose down to 250mg her tics came back worse then ever.Any change of meds seem to be th trigger.Cefzil has helped with OCD and tics.We deal with mild anxiety.Give it a try.

My 9yr old daughter was diagnosed January with Pandas and had only a month of severe OCD symptoms.It was hand washing,fears of imperfection and she was constantly questioning us for reassurance.Very hard and painful time. We have a wonderful doctor who treated her with abx and she has been now on 6 weeks worth.I feel a major change since the abx started. Hand washing stopped and questioning stopped .When I ask her if she feels any better she says that she does not know.Her anxiety appears to be less but she has no awareness if its less. I want to believe its improvement or is she hiding it well?Is the OCD in your face like it was in the first month with her? Are these Pandas kids even aware of the changes in them selves. I have a follow up appt and not sure about it all.Its just a nightmare and I don't think any of it feels real.Any parents on the Pandas planet able to get straight ansewer from their kids? Thanks for any insight.

Hi My doctor called and said my daughter's liver enzymes are elevated but didn't have time to discuss it further.Does anyone know anything about these results and how this relates to a pandas diagnosis? do the liver enzymes elevate? I appreciate your input.

Our doctor called today and said that my daughter's liver enzymes are elevated. Does anyone know anything about this and if other Pandas children have these results? I would appreciate you sharing.This forum is really a support.I thank you all for being there.

It should tell you on the package what the dosage is.My daughter is given it by weight.We are to give it to her for a week with the abx

My daughter has just started taking antibiotics(Cefprozil)4 days ago for the treatment of Pandas.He has given her a 30 day treatment. This has all been so recent of a diagnosis and I have appreciated this forum and the info I have read to educate myself.Im scared and cry so much praying for my little girl to return.I never heard of Pandas before and Im still in shock by how our life and my daughters reality changed over night, I would like to ask others how long did it take for the anxiety to diminish and intrusive thoughts when antibiotics were started? Is 4 days expecting results too soon? Ive noticed a slight change but I question weather its my wishful thinking.Please let me know your results and how long it took for the antibiotics to get rid of tics or ocd? I am also giving her Ibuprofen.

You can buy Bovine colostrum in capsules.Just add it to Milk.Its tasteless. The chemist at the apothecary said its value is not destroyed in milk even if you add chocolate,Hope that helps.

Hi, just wondering if you are Canadian too? I am in Ontario and can't find anyone in this country who has even heard of PANDAS!!! My DS7 is being treated for mood disorder and anxiety disorder in one of the leading children's psych programs affiliated with one of the major teaching hospitals here in Ontario. They hadn't even heard of PANDAS. Or at least that's what they told me back in the fall. Now when I mention it and they throw their hands up and have no idea what to say about it. I'm anxious to hear how colostrum goes for your family. We're still trying to figure out what exactly we are dealing with. PANDAS, Lyme, or both. (His labs suggest PANDAS, but he has other symptoms that suggest lyme, and my bloodwork is positive for lyme.) We have not had any lasting success on any antibiotic or supplement so far, despite some dramatic short term improvements. Hi,Im so sorry that you have been down this frustrating road. I am Canadian too in Ontario .The problem is with Pandas is that it is treated with the same Meds like any Mental health issue even if the doctor acknowledges it as a disorder.I just have no more energy for the battle either.Its an Autoimmune issue and the refusal to treat as one is hurting these kids. This Colostrum looks so promising. It helps to reverse tissue damage.The product is a high quality one called ALL_LIFE COLOSTRUM BY AOR company.Go read the Website .Very helpful with Lyme as well.Aids patients are improving with itThe immunglobins are what these children lack to deal with strep.That is what colostrum provides.I started today with it.From what I read it should not be a long wait for an improvement.Keep u updated.

Does your family member have PANDAS or LYME?

Hi My daughter is 9yrs old and has an extreme separation anxiety with her OCD Pandas. Just started new treatment colostrum today. Refusing to go to school is so hard on everyone. What I found works is reassuring my daughter that I will be at school in a minute if they call me. In the morning I go in with her and notify the teacher she has had alot of worries around coming and if she needs to come home she is to call me. Once they are there the distraction helps. The routine is hard to maintain but the teacher needs to be a safe reassurance for your kids.Knowing the teacher is there to help them helps the separation anxiety. My daughter needs to hear it directly from her teacher to feel better.Thats why I bring her in with me before school begins in the morning.I think the loneliness is so hard without understanding Mom.

COlOSTRUM is sold in USA and CANADA as a supplement in Vitamin stores. My daughter cant swallow pills so I was told to break capsule in milk ...no food for 30 minutes after taken. Taken on an empty stomach because protein destroy the benefit.Research indicates that autoimmune disorders are responding excellent to COLOSTRUM and thats what PANDAS is.Its unfortunate that its treated in Canada as a Psychiatric disorder.

Just forgot to add ....Has anyone tried Bovine Colostrum for PANDAS?

My daughter is 9 yrs old and has been diagnosed with Pandas recently. Her OCD goes from mild to severe.We have this amazing chemist in Canada who I consulted with who knew what PANDAS was right away.He put my daughter on a product called ALL_ LIFE COLOSTRUM which he says will give the immunglobins that these children lack. She is on 500mg capsule 3 times a day on an empty stomach.COLOSTRUM is amazing to read about because it is an oral way of dealing with the immune system if IVIG is not available. I will update everyone with my daughters results.Very exciting!