momofaustin

I did get the directions. Thank you!

My son was on penicillin for one year. In September he was switched to augmentin XR 2000mg/day and we saw dramatic improvements. We went a solid 2 weeks without any symptoms at all (no tics, ocd behaviors, mood swings, etc...). He has now caught a virus and some kids in his class have been diagnosed with strep so we are seeing some regression but hoping that will all subside after the illness! In addition to the augmentin XR he is taking tenex, omega-3 and flaxseed. Wow, thanks so much Vickie! They do sound similar. Do you mind sharing what treatment(s) have led your ds to wellness? We are just at the beginning of this journey. We only heard about PANDAS in August and I began to realize how much of ds's behaviour is OCD. He has high ASO, and cunninghams at 176, so now I'm convinced we're dealing with PANDAS. We just started prophylactic antibiotics (500mg/day amoxicillin, which is NOT helping). We have a consult with Dr. T on Tuesday and I"m anxious to know what he will suggest.

I live in the area and haven't heard any of the news mention PANDAS but they have mentioned Tourette's quite frequently. My son has PANDAS and he has had the hiccup tic. For unavoidable reasons he was unable to take his medication for 2 doses and he had hiccups for two days. After he was back on his regular medication schedule the hiccups went away. At any rate, the hiccup girl story is really sad.

I also could have written this post myself. As I was reading through it, it was describing many of my son's exact behaviors. It is very strange to me how similar they are. My son is in 2nd grade. I am new to this board/website and I can't tell you how nice it is to know that there are others out there that know what we are going through.

Wondering if anyone else here is on the west coast of Florida, more specifically the Tampa Bay area. Looking for support groups in the area. My son is in 2nd grade and has PANDAS. He is seeing Dr. Murphy. Would be great to know others nearby.