purple66p

Thanks for the warning about sun. We'll be more careful. On the same note, my son's Vit D was extremely low (15 ?forgot units) when it should be >30. He really does play outside a lot and drinks lots of milk, so that number really surprised me. Has anyone else experienced that? I have read that vitamin D can exacerbate autoimmune diseases, and that lower vitamin D may actually improve antibiotic effectiveness. I do know that low vitamin D adversely affects bone growth, and if we add the double-whammy of antibiotic...I've got lots of questions for the doc in Aug.

Hi--I've only recently learned about PANDAS after my son was seen by a new doc (Stewart at Austin Neurosensory Center) for sensory integration problems. He was diagnosed with bipolar and OCD 6 years ago (13 yo now) and we've been trying to treat that with only limited success. As I read more about PANDAS, I've found an almost perfect description of my son's symptoms. However, my son has had no know strep infections, but the doc did both strep titers and the #'s were elevated. I understand that we must have a second test to see if they are rising or falling, and our next appointment is Aug 3, so I will ask about that. Now to my question: my son was prescribed 6 weeks of Doxycycline (100 mg/day). Is anyone familiar with this antibiotic, and has anyone see success with it? My son's OCD has been going on for >6 years, and he is rapidly approaching puberty. If this is PANDAS-related, is there any hope of beating it? We've learned to live with the compulsions and tics and fears, but the rages when things don't go right are really hard to deal with. Thanks, CJ