ntbowen

My son has white lines across his fingernails for years now, and they grow out. Doctors have always said that it happens after an infection or insult on body...they are not spots but white horizontal lines. I actually was worried about this way before I was concerned about all the tics. Our organic acid test indicated a zinc deficiency, but we are going to run more test when we go to Pfeifer in April. I'll let you know more after our visit. Does anyone else have these white lines that grow out then come back...etc??? Natalie

Wow! Thank you so much for sharing such a sucess story. It really gives me and I'm sure everyone on this forum a boost to know that things really can turn out just fine...not perfect...but good! All we really want is for our kids to lead happy lives, and it sounds like your son did just that...you must be an incredible mom! Where did you find an allergist such as Doris Rapp around you? That is amazing you discovered all this so long ago. I think sometimes how hard it must have been before the internet, going to libraries, no support groups... Congratulations on becoming a grandmother! God Bless your family! Natalie

We finally have received our test results for heavy metals an organic acids from The Great Plains lab. Hair test from Doctor's Data: High: High aluminum Antimony High Arsenic high Bismuth high Silver high Tin high Sodium high Potassium high Low: Magnesium low Zinc Low Iron Low Manganese Low Cobalt low Selenium low Organic Acid Profile(The Great Plains Laboratory) Elevated yeast metabolites Increased HPHPA, a metabolite of tyrosine Increased Citric Elevated HVA Low vitamin C Low Pantothenic Acid Elevated Hippuric Urine Amino Acid High Creatinine EXTREMELY HIGH Ammonia (what does this mean????) High Argenine Low Lysine Low Taurine Low Proline Low Cystathionine Low Alpha-amino-N-butyrate I have three and a half year old who has many tics and some mild ASD behaviors. We are really struggling with aggression issues right now. The doctor that ordered these test is a DAN doctor in NC, but we are considering going to Pfeiffer in Chicago for help. I don't really know whether I should pursue more test with the dr. here or just go to Pfeiffer. We are on a very strict diet including Feingold, gluten and caesin free, and have eliminated corn (serious allergy) and dust mite proofed our house. Our son still has numerous facial tics, body tensing many times throughout the day, and getting "stuck" vocally a lot...we are never tic free it seems. Certainly allergies and illnesses factor in to all this, and increase these behaviors. He has gotten so much better with diet, elimination completely of TV (seems less moody), and has OT. However we still struggle so much...if anyone has any insight...please let me know. Natalie:)

Just wanted to let you know that I also have a child that is three with multiple tics and possible ASD. He does mainly facial stuff and body tensing. I have gone to the ends of the earth trying to find out what causes them, and although I haven't got it completely figured out, I know that dust (he is allergic to dust mites), and and many foods make it much worse. We are currently on Feingold too. It is an amazing diet, and I would encourage every family (probs or not) to do this...no one should be eating that artificial stuff. The hard part of the diet for me was the stuff that is supposed to be so good for you. We are completing our fouth week of elimination of salicylates, and it seems to be helping a little. My son is allergic to corn so we elimintated all the artificial stuff long ago. We are also gluten and caesin free which helps us. There is so much to try...don't get overwhelmed with information and try everything at once. Feingold is a beautiful place to start. One step at a time. You will find very helpful people of the forum who will support you. The great thing is that our kids are so young...maybe we can help them before all these social pressures arise...we have no reason at all to medicate at this point. Their not even in school yet. This is the time to try diet, supplements...etc. Natalie

Thanks for the advice. I really want to split up the MMR, but my doctors says that they don't have a way to do it. Where could I find information about where I could get this done?

I'm am having a hard time making a decision about my daughter's MMR vaccination? She is eighteen months, and now do for more immunizations including the MMR? My son has had numerous problems from tics to maybe some form of ASD...he does have problems with metals that we are trying to work with right now. Parents that have had similar issues with metals, Would you vaccinate all over again? Please offer some advice! Thanks.

Jennifer, Just a few quick questions. What brand of zinc would you recommend? You have your son on a B6/Zinc combo? I am going to add Vitamin C from the place you recommended and Zinc to start adding back. My son is 40lbs. How much does Pfeiffer recommend??? Thanks for all your help. If you want to email me personally, that would be fine too. ntbowen@hotmail.com. Natalie

Hey...I just called the Maxam company. They are really nice. They also recommended the PC3X for Cameron for detox...what do you think? Wouldn't all this be a miracle if it worked..it's hard to believe? These detoxing sprays are so expensive I wanted to check first. Thanks.

Thanks for the info...I will look it up. What probiotic did Pfeiffer recommend...this one? I really feel like Cameron needs the P5P to utilize the B6. He really responds to it so I would worry that he would not be able to use a precursor. What do you think about that? Since we have started over that only thing he is on is the Flax seed oil from Body Bio. Since taking him off vitamins, moving, new paint, we are having an awful time. He has been very aggressive with me and his sister. It's pretty disturbing. He has always been a child who is impulsive and needs to be watched closely on the playground, but now I'm scared to take him anywhere. He is also have a terrible time with transitions (won't get in the car, then won't get out of the car)...total standoffs just like before we discovered all the allergies and started vitamins. I thought the next step would be the digestive enzymes because he stools are showing he is not breaking down food very well, and this may alter the vitamin course. I ordered Houstons (three of them) and will start them next. I will also be doing the probiotic and flax oil. What do you think I should do after the digestive enzyme? B? C? We have an appointment in another month with a DAN doc but we have to get him back on vitamins because he is so hard to live with right now. I do want to add one thing at a time this time though that's why I am hesitant about the SNT even though it really did improve his mood. However he could have had bad reactions to other ingredients because it didn't do anything for tics or stimming behaviors. Thanks for listening. Natalie

Thanks for the info...I will look it up. I really feel like Cameron needs the P5P to utilize the B6. He really responds to it so I would worry that he would not be able to use a precursor. What do you think about that? Since we have started over that only thing he is on is the Flax seed oil from Body Bio. Since taking him off vitamins, moving, new paint, we are having an awful time. He has been very aggressive with me and his sister. It's pretty disturbing. He has always been a child who is impulsive and needs to be watched closely on the playground, but now I'm scared to take him anywhere. He is also have a terrible time with transitions (won't get in the car, then won't get out of the car)...total standoffs just like before we discovered all the allergies and started vitamins. I thought the next step would be the digestive enzymes because he stools are showing he is not breaking down food very well, and this may alter the vitamin course. I ordered Houstons (three of them) and will start them next. I will also be doing the probiotic and flax oil. What do you think I should do after the digestive enzyme? B? C? We have an appointment in another month with a DAN doc but we have to get him back on vitamins because he is so hard to live with right now. I do want to add one thing at a time this time though that's why I am hesitant about the SNT even though it really did improve his mood. However he could have had bad reactions to other ingredients because it didn't do anything for tics or stimming behaviors. Thanks for listening. Natalie

Jennifer, What type of probiotic do you use for you son? We have been using Kirkman's Pro-Bio gold and giving one per day. I am just running out and am about to place an order...what would you recommend and how much? Also do you know of a good B complex brand that would have P5P in it? I really want to do all the vitamins separately this time so I can know how he reacts...although his mood is SO much better on Super Nu thera! I miss it!

I know a lot of people here get them from Cardiovascular Research...you can order online.

Claire, God Bless you for all your help! You should be paid!!!!!!!! Natalie

Robin, We have a Friends school here to, and I've heard it really good. I love their philosophy. I keep reading on their website that they have little support for special needs so I have been hesitant. They have an early school my son can go to. I have been really trying to find some more outside help. I am just spent lately, and so tired. My son has been so angry and aggressive lately. It just scares me...he's only three and a half! We had friends over last night, and it was so embarrassing. I'm not sure if they will want to come back. I am feeling so isolated. I've never been sucessful with playgroups (he pushes and hits, and constantly needs to be touching or mad because some else is in his space) and I watch him like a hawk at the playgrounds because I am really afraid he will push someone off...it is crazy sometimes. My husband and I were thinking maybe we should get some type of behavioral therapy before someone gets hurt...and his poor baby sister. Do you have any recommendations for this??? How old is your son. Cape Fear academy is a good school, and they have a decent amount of support but WAY too high pressure. My one cousin does great there...he is very NT. However, my other cousin should not be there. They are NAZI with the academics. Not good for our kids. Natalie

Oh yeah...we are seeing Dr. Robert Taylor. He is a DAN doctor we got from this site. He said he used to have a lot of patients with autism....all kinds of spectrum kids but has really limited it now. He is an ENT and he really wasn't doing ENT anymore, and it got to be too much. He was perfectly willing to see us so you should give him a call. His number is 919-220-0691 in Durham, NC near Duke. He's really nice.