NMom

Would love opinions about a few things that may/may not add up to something. My DS (12) had a tonsillectomy about five weeks ago. He had a great recovery and no big post op flare. Over the last two weeks, he has developed two pretty major tics. He had three nighttime accidents in a row (not entirely unusual but he hadn't had one in a long time) and then has been fine. Then this week,he had two daytime incidents of incontinence. I took him to be tested today for a UTI and there was a small amount of protein in his urine but the test was negative for infection. They tested his glucose and it was 99. The nurse didn't really react but also didn't say that was within normal range. She just suggested that we check it again whenever he has bloodwork next time. My gut says something is going on but I'm not sure what. Flare? Growth spurt? Some new and terrible diagnosis that is going to rock our world? I may have a little PANDAS PTSD so am looking for anyone with a level head here that might have seen these symptoms before. It feels like something but I'm not sure what.

We see him on Tuesday and the initial appointment is two hours long and expensive. I'd like some insight into what the appt is like. My son was diagnosed on 2010 and is currently seeing Dr. Rao but it would be nice to have a doctor in Houston. Please PM me to share your experience with Dr. Doctor.

Thanks to everyone who responded. The X-ray today did show a large amount of stool in his intestine so he is definitely constipated. The doctor suggested a cleanse that is very popular with ped. gastro in our area. I agree though that this is not normal and certainly can't continue. I am going to look into the digestive enzymes. It may also be time to consider Lyme treatment. I hate to admit it but I've just been brushing that aside because he's done so well, there are no LLMD's in TX that I know of (we are in Houston) and I hate putting this poor kid through anything else. I think we had a positive Bartonella test at one point as well but then it was negative later so we moved on. He's also had a very high myco lab but no related symptoms during that time. I will also post on Lyme forum. Thanks again to everyone that responded.

First..thank you to everyone out here who continues to post and respond to issues. I don't post often but do watch the forum and often find answers to my questions. A little bit of backstory: my son (now 9) was diagnosed with PANDAS at 6 years of age. He had severe and sudden OCD after a strep infection as well as tics. He's been on Augmentin since June of 2010 and responded very well. We also did extensive ERP therapy and continue to use that during the small upticks that occur whenever he is getting sick. He has had a positive Lyme test (IGENEX) and a negative Lyme (Dr. . We chose not to focus on treating Lyme specifically because he has done so well on the Augmentin. But I mention it now in case maybe it has some bearing on our newest problem. For about the past six months he has had these horrible stomachaches. They were happening about every 3-4 months. He usually wakes up in the middle of the night and is in intense pain. He's shaking, crying and in one case threw up. Then he rushes to the bathroom, has a bowel movement and starts feeling better. Within about a half hour...he's perfectly fine. This has started happening more often although not as intensely. I've taken him to the pediatrician (not a PANDAS believer but at least he doesn't argue with me about it anymore!) and he believes it's constipation - Xrays indicated that as well. It's scary as ###### when it happens though. I've been on the verge of taking him to the ER more than once but it always resolves itself right after he uses the bathroom. I've got him on a priobiotic (Primal Defense) as well as Miralax every day but it continues to happen. Has anyone else had this issue? My biggest fear is that the Augmentin is damaging his stomach somehow and we are just brushing it off as constipation. Am taking him back to the pediatrician today and would appreciate the benefit of anyone else's experience. Any thought about what we should be looking for?