bgbarnes

Regarding the strep in the gut- not that I know of but I figure it has GOT to be there- it is where all his pain starts and is focused- he never has a sore throat from it- do you know how they test for that? OR should they have been able to tell with the Endoscopy? Brandy

Thanks for the tip-started the Motrin this evening- gave him Benadryl too- since I am afraid his allergies are causing further inflammation and he has a skin rash- looks similar to poison ivy but not quite- it is on his face and upper arms. Brandy

H pylori can be a trigger too? God I have a lot to learn....Since he had strep then swine before his h pylori finding I can only imagine how exacerbated his symptoms have been!! I got Dr Mazade from this board and the Pediatrician who suggested PANDAS ( but I don't know how much he knows about it- was Dr Frank in Plano Texas at Willowbend pediatrics)

Thanks everyone for the fast response!! He is on Omnicef for 10 days but I think I am going to call the PEd who suggested PANDAS and ask for longer- until we get to the Pediatric infectious disease specialist who treats PANDAS. Good call on the bed wetting and being sick- I will have to track now- because it definitely comes and goes. My husband thinks he does it defiantly but I have always known something else was up- had a sleep study had obstructive sleep apnea- had tonsils and adenoids removed at Thanksgiving- night wetting has gotten better- but as I said it comes and goes....interesting! THANKS! BRandy

WOW! I have already learned so much just by reading as many posts as possible....Yesterday I hear the words PANDAS syndrome for the first time... I have been reading ever since... I am part scared, part relieved and part exhausted. My son is 7 almost 8. He has had behavior issues we have dealt with off and on his whole life. Every Spring is gets bad- REALLY BAD. Last weekend he knocked over his chest of drawers, thinks nothing of trying to bite or scratch me, is defiant and disrespectful. It is as if he is a different kid- not that he does not have disrespectful tendencies to start with but it has gotten really bad. He had to spend a whole day locked in his room for his unwillingness to function appropriately- I almost took him to the ER because I could not get him calmed down. He has often said he can't control it- he also has said there are these cards in his head that tell him to do these things. We had strep about a month-6 weeks ago- started with stomach pain as always. Had a course of Amoxicillan and then got a stomach bug after(threw up all night)- followed up with stomach pain again- negative strep test. Went back to GI Dr and figured h pylori must be back ( had an endoscopy in the Fall and tested positive for h pylori- thought stomach problems would be over) been having stomach issues after last round of strep went back to GI b/c negative strep test and started h pylori meds again. Had been on Amoxicillan for 8 days b/c of h pylori treatment ( which I realize now was not a re-occurance of h pylori but of strep) and and we tested positive for strep yesterday- now we are on Omnicef. The Doctor suggest PANDAS due to his behavior shifts with strep. I know for a fact he has always had a deterioration in behavior when he has strep. He does not have any tics- but has had some in his life- lip licking, excessive blinking but none that I know of at his time. WE have night wetting, sometimes day wetting, compulsions, a greater fear of the dark than usual- must have doors closed when upstairs- someone must turn on lights, defiance ( SERIOUS defiance), emotional lability- rages, moodiness etc... I have always thought he had some anxiety issues. He is the kid that can't keep his hands to himself and when he is in a bad space will just hurt people. We live in Texas and have an appt with Dr mark Mazade April 21st...Any tips what to do until then????? Brandy