tired mom

So happy to hear your doing soooo much better. It is nice to read something positive .

I will keep you in my prayers as I know the struggle all to well. If it helps you feel better about your son wearing shorts my sisters dd will only wear her crocs to school with no socks. The effort it takes to just get her dressed is unbelievable. I feel your stress and hope your ped. has a sympathetic ear. Been there and know the feeling that you might as well have spoken to the wall. Good Luck and God Bless!!

Tonight I was thinking about how this illness consumes each and every one us. Maybe it would help to share what we all have built up inside. I'll start by saying....I hate how it robbed my kid of her childhood and even when things are good you cannot help but remember how bad it was and wonder when it will strike again. I hate looking at photos and thinking that was before it struck or that was when she was better or that was right before it came back. I hate that there are no solid answers. Maybe that should be the new name.."IT".....

First of all..Big Hug Second thing,for what it's worth,the friends you have in high school most likely won't be your friends in a couple years. The friends I have now that are closest to my heart were not part of my life in high school. Time heals,and life goes on. You are smart enough to know that what your dealing with is far beyond the all the drama of high school girls. It is Ok to feel BLAH!! you have every right to. I know you will bounce back real soon!! Keep fighting kid..YOU'RE WORTH IT...

That is a very low dose. My daughter was on .25. It did help with anxiety and rage. She only took it when she felt she really needed it. I was afraid too, but there is nothing to be frightened about except the fact that it only lasts for 4 hours.

I don't know what your daughters symptoms are but am glad to hear she is showing improvement. Having a carrier in the house must be difficult to get a handle on things. My daughter stays at my mom's when things seem to sprial out of control. It seems her OCD is much worse at home and when it is out of control she removes herself from this enviroment and finds a sense of peace at my mom's. Her symptoms have always been under control when she was anywhere else then home

From one tired mom to another just want to say I am sorry your dealing with this. This one has me speechless. I think I would insist on a stool test. Just call your Dr. and insist you want to have it done. You don't even need to take your child in, you can tell them to write out the orders you will pick it up and then stop at the lab and they will give you something for the stool and have your son do it at home. Good Luck.

I am so sorry for you and your dd. My dd did the knife thing too. She never put it to her throat but she would take the biggest knife out of the butcher block and tell my husband and I she wanted to kill us. We can only speak of our own children but I can tell you I just knew she was not capable of hurting us. At the time we were in counseling a couple times a week and the therapist said any threats we should go to crisis at the hospital. So the next time we were faced in this crisis mode off to the hospital we went.- BIG MISTAKE- if you have ever dealt with a crisis unit you will know where I am coming from. I came home feeling more desperate then before. Maybe in bigger cities with better hospitals you will find help but not in a small town like mine. In another desperate attempt I found myself back in the crisis unit and pleaded with them to take my daughter to Hershey Medial Center. While in the hospital her doctor was trying in vain to get her to Hershey. We ended up that day coming home lost in despair. The nurse at her doctors office phoned me that night just out of concern. She apologized to me and told me she cannot imagine how I must feel. She and the doctor had spent hours on the phone trying to find someplace for my daughter and came up empty handed. The reality of all this is that our children ARE NOT mentally ill and when in an exacerbation there is no safe haven for them. The thought of my daughter being placed in a psyc unit with some of the people I saw in the crisis unit was a---Lets just say I would rather have a knife in my face. _BAD MEMORY_

I always found comfort listening to this song. Thought this was a good post to share it with everyone. http://www.youtube.com/watch?v=mmfvaLKR6Is

This has been the hardest part for us. The rages are so scary and unpredictable. As I look back now I sometimes wonder how my marriage survived. There is no simple answer as to how to handle it. Unless it affects your life and you live it will you truly understand the fear, heartbreak and turmoil rages create. Like your child mine was always fine at school. It was her home and comfort zone she was able to release all the anxiety she held in for hours at school. It was NEVER pretty. I never punished her for something she could not control.I sheltered my son the best I could and always told him his sister loves him and she is sick. We have not had rages for awhile now but I truly feel your pain and hope you find relief soon.

I agree that it seems to be a compulsion. Mine did it several times a day and would come downstairs at night to just eat ice. This was during an exacebation and when that was over so was the whole ice thing.

Just want you to know, I know how hard it is to live in such a bizarre world. I am dealing with this for 8 years so I understand the pain of watching their childhood being destroyed by this. It takes such a remarkable patience to deal with some of the behaviors. Here's hoping that he will shut that door and open one that has a happy ending....

The IgMs have remained high for a year now. Her doc seems more concerned with the IgMs then the IgGs. I am waiting for results for bloodwork she just had done this week and see where we stand. When we saw Dr. T back in the spring he said he believes she has been dealing with this for a very long time. He refers to it as an acute mycoplasma infection. Can I ask what you have tried as far as eradicating it? 90 days Biaxin,30 days zith,and another 10 days zith(500mg). So my daughter text me today before she got home from college to say the docs office called her (now 18) and says her bloodwork is normal. So I call and tell them to read me her levels. IgG is 3.0 and IgMs are 2036. NORMAL??? So I say "Does it not say high on that lab sheet" to which he responds "yes it does" but the doc has written" Good" on her report. Then he tells me she has the antibodies that show at some point she had mono. No clue when that could have been. TGIF because I need a drink!!!

The IgMs have remained high for a year now. Her doc seems more concerned with the IgMs then the IgGs. I am waiting for results for bloodwork she just had done this week and see where we stand. When we saw Dr. T back in the spring he said he believes she has been dealing with this for a very long time. He refers to it as an acute mycoplasma infection.

We are in same boat with myco. I think we are staring right at the monster and it won't back down. Myco seems indestructible at this point..

I had the same problem when my daughter was 15. In her case we learned that she did not have a second set of molars(all 4). Her baby molars are in perfect condition with a strong root and she will not lose them because there is nothing above them to lossen them. This is the reason her 12 year molars were painful when they came in. The baby molars are actually bigger then the permanent ones, leaving less room for the 12 year molars and no room at all for wisdom teeth. Just a thought as to why they are taking so long to come in.

I know how frustrating this can be as a mother of a teen myself. I think your son feels scared and deep down he knows he needs help. The fact he wants you to remember his medicine is a good thing. We can't imagine what they feel like inside. It must be scary to know that something is wrong and they must think at times they are crazy. I always found it helpful for a family member to talk with her. The best advice someone gave her was that this illness is hers, she has to claim it. Till this day she refuses to admit she has Pandas but instead tells everyone she has a screwed up immune system. We meet half way. As they get older they research alot on ther own too and sometimes that puts us in a difficult spot.

Yes it seems to be that added security was added to the dorm. They now have to enter a code before entering and there are security guards outside. She did question them and they told her they cannot say why they are there. She just phoned and is getting hives again! Mon. morning can not come soon enough..

She is about 100 miles away. Not too far but not real close either. I hope it is short lived too. Enjoy those little girls, they grow up way to fast!!

Thank you Stephanie! My husband is telling her right now. Mono is a virus I am pretty sure as they don't in general prescribe abxs for it. With our kids though anything is a red flag. Thanks again, I really do appreciate the advice and I am passing the info on to her!

Is your dd on Amoxcillin, or a similar antibiotic? If she has gotten mono (and is amoxicillin) she probably has the rash from the combo. of the two. http://ehealthforum.com/health/topic13021.html Mono. (without amoxicillin) can also cause a rash. Below is from that link: As you may or may not know, giving amoxcillin, ampicillin, or penicillin to someone with mono almost guarantees that they get a lovely, full-body rash. What a lot of sites *don't* tell you is that this is not the same rash that a small number of mono sufferers get on their own (i.E. Without the aid of antibiotics), and which doesn't itch or last very long. This rash is much, much worse. Anyway, I hope she is feeling better soon! Thanks EAMom. She is currently not taking any abx.Has an appt on the 9th of Oct.and going to run more bloodwork then. The last abx. she took was another course of zith along with minocycline. Can't seem to get the IgM level down. She got an upset stomach from the minocycline and did not take it. She does however have it with her and I told her to take it. Hopefully she does not have mono but she does have a sore throat and swollen glands.

I have not posted in awhile because things have been OK. Not baseline but pretty darn close. My daughter started college this year and got right in the swing of it. Pretty much enjoying all the freedom and the new experiences. She has chosen special ed. as her major. She called me at 3am Sat. morning crying saying she was not feeling well. She had recently started seeing someone there and told me his friend had just taken him to the hospital because he was feeling so ill. He texted her to tell her the doctors think it is mono. My heart stops for a second. She sounds so scared and I feel helpless. To add to all this she said something weird is going on in her dorm. They have added extra security and she had heard someone is after a girl who lives there. She informs me that they have to go to lectures as to what to do in the event of a shooting on campus. I assure her that is saftey measures that need to be taken and to always be careful,never go anywhere alone and everything a parent would tell their child. So now I am very concerned because not only is she stressed she also is not feeling well. She called this morning to say she started to get some hives. This is what happened last year after she got myco. Then everything went downhill. I am calling her doctor tomorrow and hopefully start her on something. I already told her to take ibuprofen every 4 hour until I call the Dr. Mon. morning. It always seems that soon as things begin to run smoothly....BAM!!!!

I am right there with you fighting this for what seems like forever. I know that whenever dd's symptoms started to ramp up anything out of place would through her into a full blown rage. I know they say don't enable your child but they also don't live with it. We get sucked into the OCD world. My daughter would throw things all over the house if she felt it was not placed the way it should be. The renovations and change may be hard for her to handle. I know how difficult it is for you. This disorder sucks everything out of us. I hope your kitchen comes out beautiful and remember things will get better again.

This was posted about sometime earlier this year. I am sorry to say it was frowned upon then too. I am not questioning the doctor, just saying it sounds a little harsh.

I have also been my dd's "trigger". I agree that I believe it is because of a mothers unconditional love that we are targeted. As sad as it makes me I am glad I was her trigger and the one who she took everything out on. My husband does not have the patience and a very quick temper and her younger brother has already seen enough.